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Unit 4 - Health and Social Care

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Principles of Effective Care
Anti-discriminatory practice is described as an approach where patients or service users are treated with respect regardless of their health status, age, gender, religious beliefs, and other characteristics (Nzira and Williams, 2016). It is well-established in literature that patients with dementia, those with learning disabilities, individuals with progressive and debilitating disorders, and those with different religious beliefs and practices often experience discrimination when accessing health and social care services (Togioka et al., 2024). Ensuring that these persons are legally protected against discrimination is crucial in promoting their health and wellbeing. In the UK, the Equality Act 2010 (UK Legislation, 2010) underpins anti-discriminatory practice and outlines the different characteristics that are legally protected in the UK. Legislations such as the Equality Act 2010 promotes person-centred and holistic care for these individuals. In Doha, the Bill of Rights of the patients remain as the main guide in protecting patients and preventing anti-discriminatory practices.

In the first case, Sabha, a 25-year old patient, will be transferred to a facility with people who are around her age. Sabha has a progressive disorder that affects her muscles, which make it difficult for her and her family to take care of her needs. In the case, Sabha was angry that she was admitted to the care facility. Literature (Brown et al., 2023) has shown that young adults suffering from a progressive muscular disorder can experience frustration, grief and anger due to loss of function of their limbs or muscles. These feelings could be heightened especially if they feel that they are becoming a burden to their families and need to be transferred to a care facility. In the case, Sabha understands that her ageing parents and siblings could no longer support her care needs. The action of placing her in a facility with people close her age is important as this can potentially promote Sara’s wellbeing and prevent discrimination.

Transferring Sabha to a care facility with people closer to her age can promote social engagement and reduce feelings of isolation since she will participate in age-appropriate activities (Beresford and Stuttard, 2014). Living in a facility where others are also experiencing the same condition(s) or physical limitations can help her feel that she is not alone. Her peers may offer emotional support, which in turn can improve her coping mechanisms (Reynolds et al., 2022). This type of care facility can also promote her independence and identity despite her progressive condition. However, there are still challenges when living in this type of facility. For instance, Sabha’s progression of her condition might differ significantly compared to her peers in the facility, thereby creating challenges when coordinating her care (Aubrecht et al., 2021). Sabha might also witness the deterioration or decline of her peers, which might result in grief and depression (Reynolds et al., 2022).

Sabha’s case also requires that reasonable adjustments should be made to accommodate her needs. Providing her with holistic and personalised care during her stay in the care facility is crucial as this ensures that her care needs are addressed. Anti-discriminatory practice promotes the wellbeing of individuals by ensuring that reasonable adjustments are made to ensure that that care needs are satisfied (Swihart et al., 2023). For instance, Sabha should not be discriminated due to her physical condition. This will require the healthcare staff in the hospital to request special meals and adjustments to her physical environment to meet her needs. The ethics principle of beneficence states that healthcare interventions should be beneficial to the patients and promote their emotional, physical, mental and spiritual wellbeing (Beauchamp and Childress, 2019). Hence, making reasonable adjustments to meet the physical needs of Sabha will be aligned with the ethics principle of beneficence.

From this case study, the centre’s health and social care staff is following anti-discriminatory practices as effort is made to make reasonable adjustments for Sabha. The support that Sabha receives from the carers and professionals will promote her health and wellbeing and feelings of being included in the care process. However, there are still limitations even with the observation of reasonable adjustments. As outlined above, challenges on how to maintain an environment where Sabha feels included and supported can remain. Hence, providing her with the needed support as her own condition deteriorates could help alleviate perceptions and feelings of being isolated and lonely.

In the second case, Nusrat, an 86-year female patient with dementia is admitted to the residential facility for further assessment of her behaviour. She has become violent and for hers and her family’s safety, she is placed in a residential facility. This action ensures that Nusrat receives care while undergoing assessment in a safe environment. Further, placing her in the care facility allows the staff members to monitor her condition and reactions to medications. Nusrat’s case exemplifies anti-discriminatory practice since she will be given tailored and personal care in the residential facility. For instance, a structured environment can promote comprehensive assessment and identify the root cause(s) of Nusrat’s challenging behaviour (Gkioka et al., 2020). She can also access specific behavioural management strategies such as activity engagement, calming techniques and redirection (O’Donnell et al., 2022). However, to achieve this, it is crucial for the healthcare staff to be trained to manage challenging behaviours. Further, the staff also have to identify triggers and verify if her medication(s) cause her behaviour. This can be difficult as patients like Nusrat may have difficulties in communication (O’Donnell et al., 2022). Hence, being trained on how to communicate effectively with patients like Nusrat is vital in residential care facilities.

It is noteworthy that communication challenges can also be a trigger to challenging behaviour in dementia patients (Rousseaux et al., 2010). As they struggle to express their frustrations of not being understood or when they struggle to express their needs, this can lead to behaviours such as repetitive actions, aggression, and agitation (Banovic et al., 2018). People with dementia also find it difficult to understand complex language, or follow conversations, which can heighten feelings of frustrations or lead to disruptive behaviour (Banovic et al., 2018). It should be noted that challenging behaviours are a means for those with dementia to communicate emotions such as pain, fear, confusion or anxiety that they have difficulties in verbally expressing (Rousseaux et al., 2010).

As demonstrated in the case, the staff members also have to balance the need for Nusrat to receive her medication to manage her behaviour while also addressing potential side effects. Since it is suggested that her behaviour may be caused by her previous medications, the staff has to determine which of her medications is causing her behaviour. Results from these observations will allow staff members to tailor her medications according to her needs. Further, the staff members also have to navigate Nusrat’s family concerns, involve them in care planning and manage their expectations (Enmarker et al., 2011). Specifically, staff members have to reassure the family members that Nusrat is receiving the care she needs and is safe from harm in the facility. This can be concerning for family members as Nusrat’s behaviour may escalate especially when placed in a new environment (Enmarker et al., 2011). Hence, the ability of staff members to de-escalate situations could provide assurance to the family members that they can manage Nusrat’s behaviour and still treat her with respect and dignity.

Meanwhile, Nusrat may also feel disrespected due to her cognitive impairment and physical limitations. Further, she may also face difficulties interacting with other service users due to her disabilities and limitations (Irmo et al., 2017). It is necessary for care staff members in the care facility to help service users like Nusrat feel included and to promote an environment where she feels respected and cared for. Implementing legislations such as the Equality Act 2010 (UK Legislation, 2010) or similar laws in Doha can create a supportive environment since reasonable adjustments will be made. This is important as historically, people with dementia and those with disabilities are often treated with intolerance, ignorance, prejudice and ambivalence (Irmo et al., 2017). Making reasonable adjustments, such as educating other service users about the needs of people with dementia, and practicing de-escalation techniques could promote Nusrat’s wellbeing.

An evaluation of the centre through the two case studies shows that healthcare staff members also practice anti-discriminatory practices. However, safety concerns for both Nusrat and the staff members remain. While this is a valid concern, this can be addressed through training staff members on how to de-escalate challenging behaviour, and identify triggers early in the care of the patient. Further, creating an environment where Nusrat feels at ease and calm could promote her health and wellbeing. For instance, a quiet environment and implementing evidence-based interventions to reduce aggression could lead to increased patient satisfaction and higher quality of care. In Sabha’s case, there is a need to create an environment where she does not feel isolated and lonely.

Reply 1

Original post
by AltSkrald
Is my essay good so far?
Principles of Effective Care
Anti-discriminatory practice is described as an approach where patients or service users are treated with respect regardless of their health status, age, gender, religious beliefs, and other characteristics (Nzira and Williams, 2016). It is well-established in literature that patients with dementia, those with learning disabilities, individuals with progressive and debilitating disorders, and those with different religious beliefs and practices often experience discrimination when accessing health and social care services (Togioka et al., 2024). Ensuring that these persons are legally protected against discrimination is crucial in promoting their health and wellbeing. In the UK, the Equality Act 2010 (UK Legislation, 2010) underpins anti-discriminatory practice and outlines the different characteristics that are legally protected in the UK. Legislations such as the Equality Act 2010 promotes person-centred and holistic care for these individuals. In Doha, the Bill of Rights of the patients remain as the main guide in protecting patients and preventing anti-discriminatory practices.
In the first case, Sabha, a 25-year old patient, will be transferred to a facility with people who are around her age. Sabha has a progressive disorder that affects her muscles, which make it difficult for her and her family to take care of her needs. In the case, Sabha was angry that she was admitted to the care facility. Literature (Brown et al., 2023) has shown that young adults suffering from a progressive muscular disorder can experience frustration, grief and anger due to loss of function of their limbs or muscles. These feelings could be heightened especially if they feel that they are becoming a burden to their families and need to be transferred to a care facility. In the case, Sabha understands that her ageing parents and siblings could no longer support her care needs. The action of placing her in a facility with people close her age is important as this can potentially promote Sara’s wellbeing and prevent discrimination.
Transferring Sabha to a care facility with people closer to her age can promote social engagement and reduce feelings of isolation since she will participate in age-appropriate activities (Beresford and Stuttard, 2014). Living in a facility where others are also experiencing the same condition(s) or physical limitations can help her feel that she is not alone. Her peers may offer emotional support, which in turn can improve her coping mechanisms (Reynolds et al., 2022). This type of care facility can also promote her independence and identity despite her progressive condition. However, there are still challenges when living in this type of facility. For instance, Sabha’s progression of her condition might differ significantly compared to her peers in the facility, thereby creating challenges when coordinating her care (Aubrecht et al., 2021). Sabha might also witness the deterioration or decline of her peers, which might result in grief and depression (Reynolds et al., 2022).
Sabha’s case also requires that reasonable adjustments should be made to accommodate her needs. Providing her with holistic and personalised care during her stay in the care facility is crucial as this ensures that her care needs are addressed. Anti-discriminatory practice promotes the wellbeing of individuals by ensuring that reasonable adjustments are made to ensure that that care needs are satisfied (Swihart et al., 2023). For instance, Sabha should not be discriminated due to her physical condition. This will require the healthcare staff in the hospital to request special meals and adjustments to her physical environment to meet her needs. The ethics principle of beneficence states that healthcare interventions should be beneficial to the patients and promote their emotional, physical, mental and spiritual wellbeing (Beauchamp and Childress, 2019). Hence, making reasonable adjustments to meet the physical needs of Sabha will be aligned with the ethics principle of beneficence.
From this case study, the centre’s health and social care staff is following anti-discriminatory practices as effort is made to make reasonable adjustments for Sabha. The support that Sabha receives from the carers and professionals will promote her health and wellbeing and feelings of being included in the care process. However, there are still limitations even with the observation of reasonable adjustments. As outlined above, challenges on how to maintain an environment where Sabha feels included and supported can remain. Hence, providing her with the needed support as her own condition deteriorates could help alleviate perceptions and feelings of being isolated and lonely.
In the second case, Nusrat, an 86-year female patient with dementia is admitted to the residential facility for further assessment of her behaviour. She has become violent and for hers and her family’s safety, she is placed in a residential facility. This action ensures that Nusrat receives care while undergoing assessment in a safe environment. Further, placing her in the care facility allows the staff members to monitor her condition and reactions to medications. Nusrat’s case exemplifies anti-discriminatory practice since she will be given tailored and personal care in the residential facility. For instance, a structured environment can promote comprehensive assessment and identify the root cause(s) of Nusrat’s challenging behaviour (Gkioka et al., 2020). She can also access specific behavioural management strategies such as activity engagement, calming techniques and redirection (O’Donnell et al., 2022). However, to achieve this, it is crucial for the healthcare staff to be trained to manage challenging behaviours. Further, the staff also have to identify triggers and verify if her medication(s) cause her behaviour. This can be difficult as patients like Nusrat may have difficulties in communication (O’Donnell et al., 2022). Hence, being trained on how to communicate effectively with patients like Nusrat is vital in residential care facilities.
It is noteworthy that communication challenges can also be a trigger to challenging behaviour in dementia patients (Rousseaux et al., 2010). As they struggle to express their frustrations of not being understood or when they struggle to express their needs, this can lead to behaviours such as repetitive actions, aggression, and agitation (Banovic et al., 2018). People with dementia also find it difficult to understand complex language, or follow conversations, which can heighten feelings of frustrations or lead to disruptive behaviour (Banovic et al., 2018). It should be noted that challenging behaviours are a means for those with dementia to communicate emotions such as pain, fear, confusion or anxiety that they have difficulties in verbally expressing (Rousseaux et al., 2010).
As demonstrated in the case, the staff members also have to balance the need for Nusrat to receive her medication to manage her behaviour while also addressing potential side effects. Since it is suggested that her behaviour may be caused by her previous medications, the staff has to determine which of her medications is causing her behaviour. Results from these observations will allow staff members to tailor her medications according to her needs. Further, the staff members also have to navigate Nusrat’s family concerns, involve them in care planning and manage their expectations (Enmarker et al., 2011). Specifically, staff members have to reassure the family members that Nusrat is receiving the care she needs and is safe from harm in the facility. This can be concerning for family members as Nusrat’s behaviour may escalate especially when placed in a new environment (Enmarker et al., 2011). Hence, the ability of staff members to de-escalate situations could provide assurance to the family members that they can manage Nusrat’s behaviour and still treat her with respect and dignity.
Meanwhile, Nusrat may also feel disrespected due to her cognitive impairment and physical limitations. Further, she may also face difficulties interacting with other service users due to her disabilities and limitations (Irmo et al., 2017). It is necessary for care staff members in the care facility to help service users like Nusrat feel included and to promote an environment where she feels respected and cared for. Implementing legislations such as the Equality Act 2010 (UK Legislation, 2010) or similar laws in Doha can create a supportive environment since reasonable adjustments will be made. This is important as historically, people with dementia and those with disabilities are often treated with intolerance, ignorance, prejudice and ambivalence (Irmo et al., 2017). Making reasonable adjustments, such as educating other service users about the needs of people with dementia, and practicing de-escalation techniques could promote Nusrat’s wellbeing.
An evaluation of the centre through the two case studies shows that healthcare staff members also practice anti-discriminatory practices. However, safety concerns for both Nusrat and the staff members remain. While this is a valid concern, this can be addressed through training staff members on how to de-escalate challenging behaviour, and identify triggers early in the care of the patient. Further, creating an environment where Nusrat feels at ease and calm could promote her health and wellbeing. For instance, a quiet environment and implementing evidence-based interventions to reduce aggression could lead to increased patient satisfaction and higher quality of care. In Sabha’s case, there is a need to create an environment where she does not feel isolated and lonely.

In the second case, Nusrat, an 86-year female patient with dementia is admitted to the residential facility for further assessment of her behaviour. She has become violent and for hers and her family’s safety, she is placed in a residential facility. This action ensures that Nusrat receives care while undergoing assessment in a safe environment. Further, placing her in the care facility allows the staff members to monitor her condition and reactions to medications. Nusrat’s case exemplifies anti-discriminatory practice since she will be given tailored and personal care in the residential facility. For instance, a structured environment can promote comprehensive assessment and identify the root cause(s) of Nusrat’s challenging behaviour (Gkioka et al., 2020). She can also access specific behavioural management strategies such as activity engagement, calming techniques and redirection (O’Donnell et al., 2022). However, to achieve this, it is crucial for the healthcare staff to be trained to manage challenging behaviours. Further, the staff also have to identify triggers and verify if her medication(s) cause her behaviour. This can be difficult as patients like Nusrat may have difficulties in communication (O’Donnell et al., 2022). Hence, being trained on how to communicate effectively with patients like Nusrat is vital in residential care facilities.

It is noteworthy that communication challenges can also be a trigger to challenging behaviour in dementia patients (Rousseaux et al., 2010). As they struggle to express their frustrations of not being understood or when they struggle to express their needs, this can lead to behaviours such as repetitive actions, aggression, and agitation (Banovic et al., 2018). People with dementia also find it difficult to understand complex language, or follow conversations, which can heighten feelings of frustrations or lead to disruptive behaviour (Banovic et al., 2018). It should be noted that challenging behaviours are a means for those with dementia to communicate emotions such as pain, fear, confusion or anxiety that they have difficulties in verbally expressing (Rousseaux et al., 2010).

As demonstrated in the case, the staff members also have to balance the need for Nusrat to receive her medication to manage her behaviour while also addressing potential side effects. Since it is suggested that her behaviour may be caused by her previous medications, the staff has to determine which of her medications is causing her behaviour. Results from these observations will allow staff members to tailor her medications according to her needs. Further, the staff members also have to navigate Nusrat’s family concerns, involve them in care planning and manage their expectations (Enmarker et al., 2011). Specifically, staff members have to reassure the family members that Nusrat is receiving the care she needs and is safe from harm in the facility. This can be concerning for family members as Nusrat’s behaviour may escalate especially when placed in a new environment (Enmarker et al., 2011). Hence, the ability of staff members to de-escalate situations could provide assurance to the family members that they can manage Nusrat’s behaviour and still treat her with respect and dignity.

Meanwhile, Nusrat may also feel disrespected due to her cognitive impairment and physical limitations. Further, she may also face difficulties interacting with other service users due to her disabilities and limitations (Irmo et al., 2017). It is necessary for care staff members in the care facility to help service users like Nusrat feel included and to promote an environment where she feels respected and cared for. Implementing legislations such as the Equality Act 2010 (UK Legislation, 2010) or similar laws in Doha can create a supportive environment since reasonable adjustments will be made. This is important as historically, people with dementia and those with disabilities are often treated with intolerance, ignorance, prejudice and ambivalence (Irmo et al., 2017). Making reasonable adjustments, such as educating other service users about the needs of people with dementia, and practicing de-escalation techniques could promote Nusrat’s wellbeing.

An evaluation of the centre through the two case studies shows that healthcare staff members also practice anti-discriminatory practices. However, safety concerns for both Nusrat and the staff members remain. While this is a valid concern, this can be addressed through training staff members on how to de-escalate challenging behaviour, and identify triggers early in the care of the patient. Further, creating an environment where Nusrat feels at ease and calm could promote her health and wellbeing. For instance, a quiet environment and implementing evidence-based interventions to reduce aggression could lead to increased patient satisfaction and higher quality of care. In Sabha’s case, there is a need to create an environment where she does not feel isolated and lonely.

In summary, the two case studies exemplify the importance of promoting individualised care to people with protected characteristics. Their diverse needs require holistic care that is specific to their care needs. Although anti-discriminatory practice is promoted in actual care settings, providing them with the needed care could be difficult and challenging. Despite these challenges, allowing patients and their family members to be involved in their own care will result in quality care and high patient satisfaction.


Task 2

A multi-disciplinary and multi-agency approach are strongly recommended in care settings since these have been shown to promote the health and wellbeing of individuals and their family members and improve the quality of care (Glasby, 2014). There are at least three health and social care professionals needed to address Nusrat’s and Sabha’s cases. First, both service users needs to have a dementia or community nurse who can help assess and monitor their progress while in the care settings. Second, both patients need an occupational therapist to develop individualised care plans to help address aggressive behaviour for Nusrat and for Sabha, to ease feelings of isolation and loneliness. Third, a social worker can assess Nusrat’s environmental and social needs and assess her support system and family dynamics. A social care worker likewise is needed to assess the family dynamics and support system of Sabha and promote holistic care.

Dementia nurses serve in the forefront of care for individuals with dementia and have specialised and unique perspectives on how patients and their carers experience the disease and its progression (Khanassov et al., 2021). These nurses are crucial in identifying the changing symptoms of dementia and the progression of the disease. Since dementia is progressive, dementia nurses can monitor the physical needs of the patients and their carers. In Nusrat’s case, having the same dementia nurse since her diagnosis to current management is essential. However, in actual community and care settings, turnover of healthcare staff members remains high in the UK and abroad (Fortinsky et al., 2014). The continuity of home care services to residential care may be disrupted due to fast turnover of nurses. Hence, there is a concern that Nusrat may not experience consistency on patient care if she experiences fast turnover of dementia nurses. Literature (Riley et al., 2018) has shown that turnover of healthcare staff members can result in uncertainty and anxiety for dementia patients, which in turn can heighten aggression or promote challenging behaviour.

In addition, dementia nurses are involved in administration of medications and monitoring for their potential complication. As demonstrated in Nusrat’s case, is it suspected that her medications might have contributed to her challenging behaviour, leading to her admission in the care facility. The specialised knowledge of these nurses and their constant interaction with the patients and family members can provide context on the effects of medications on the behaviour of the patients. Nusrat’s patient medication records prior to her admission in the care facility and her current medications can inform the team if side effects of these medications contribute to her aggression. These dementia nurses also collaborate with other members of the healthcare team to develop a holistic care plan.

Meanwhile, in Sabha’s case, a community nurse is essential in assessing her condition and its progression. A community nurse provides comprehensive care, which include advocacy for Sabha and education for both the patient and her family members (Birnkrant et al., 2018). Further, the community nurse can connect Sabha and family members to community resources or referring them to a residential or care facility to manage symptoms of the condition. Evidence (Birnkrant et al., 2018) from published literature has consistently pointed out the role of community nurses in addressing the unique needs of patients with progressive muscular conditions and their carers. Specifically, these nurses are involved in managing the needs of the patients, which can be complex, and in offering psychosocial support.


An occupational therapist is an important member of the team and is involved in developing care plans that will address challenging behaviour for Nusrat. This healthcare professional can conduct comprehensive behavioural assessment to identify patterns of challenging behaviour and triggers to this behaviour (O’Donnell et al., 2021). Evidence-based strategies supported in literature to be effective in managing challenging behaviours include positive reinforcement, environmental modifications and redirection (O’Donnell et al., 2021). However, it is notable that despite these strategies being supported in literature to be effective in managing behavioural challenges, not all of these will be effective for all dementia patients. Specifically, interventions that are effective in one patient might not be effective in another patient. Hence, there is a need to tailor the interventions according to the patient’s circumstances, level or stage of dementia, current care needs, and type of family support available.

Integrating other interventions that might address challenging behaviour will still be necessary in Nusrat’s case. Since the occupational therapist is trained in assessing and identifying challenging behaviours, he or she can help the family members, the patient, and other members of the healthcare team develop a more holistic and individualised approach for Nusrat. For instance, Nusrat’s ethnicity and religious background might have an influence on hers and her family’s wellbeing and perspectives on dementia as a disease. Using these perspectives when creating interventions would ensure that anti-discriminatory practices are observed and the patient and her family member’s religious beliefs and ethnicity are respected and used to manage her symptoms (Britt et al., 2022).

In Sabha’s case, an occupational therapist is necessary in helping design activities that are age-appropriate and can be beneficial to Sabha and her peers in the care facility. Notably, patients with progressive muscular condition are at increased risk of depression or loneliness, which in turn can negatively impact quality of life and progression of the disease (Birnkrant et al., 2018). The presence of an occupational therapist can help manage these symptoms and allow Sabha to develop coping mechanisms.

A third health and social care professional needed in Nusrat’s and Sabha’s care team is a social care worker. A social care worker connects family members of Nusrat and Sabha to support groups that can help them manage the stress of caring for an individual with dementia and those with long-term muscular conditions. Providing support for the carers is essential as carer burden can negatively impact the ability of family members to provide care (Moore et al., 2018). A study (Khanassov et al., 2021) has shown that less than 10% of carers of people with dementia felt that their care needs were assessed and met. This is concerning as these family members or carers provide long-term care daily to the patients. Interestingly, a study of carers and family members of patients with long-term muscular conditions also reveal the same pattern (Domaradzki and Walkowiak, 2024).

Some of the healthcare conditions these family members or carers may experience include depression because of the realisation that their family members might never be cured from their condition, and feelings of hopelessness and isolation (Khanassov et al., 2021). Notably, most of these carers are spouses of those with dementia who may be aged and have comorbid conditions, thereby complicating the care process (Moore et al., 2018). Meanwhile, for parents of people with long-term muscular deterioration or conditions, they may experience significant severe burden, which impact their quality of life (Domaradzki and Walkowiak, 2024). The presence of a social care worker is crucial as this professional has the knowledge and experience of referring carers to appropriate health and social care services and ensuring that they receive the needed support and healthcare interventions.


In the UK, support for carers is enshrined in the Care Act 2014 (UK Legislation, 2014). This is the first legislation that recognises that carers of patients with long-term conditions should also receive an assessment of their care needs and for these needs to be addressed holistically. Although a similar legislation is not yet published in Doha, it is noteworthy that their current Bill of Rights and Responsibilities for their patients ensures that patients receive support from caregivers. However, specific mandates to assess and provide care for the carers is still missing.


In the two case studies, the integration of these three members in the team is critical in promoting holistic and tailored care. Presence of these three health and social care professionals will ensure continuity of care. However, it is necessary during sharing of information that confidentiality is maintained. As an example, the Nursing and Midwifery Council’s (NMC) (2018) Code has stressed that patient confidentiality should be maintained to protect their privacy and ensure that only the assigned healthcare professionals have access to healthcare records. In addition, the Data Privacy Act or Data Protection Act 2018 (UK Legislation, 2018) in the UK emphasises the need of maintaining confidentiality and never sharing information to a third party. This is mirrored in the Qatar Data Protection Law, known as Qatari Law No. 13 of 2016, which also promotes confidentiality of shared medical records (National Cyber Security Agency, 2016). Currently, safeguards are in place in the Doha to maintain confidentiality of patient records as these are shared to members of a multidisciplinary and multi-agency care team.

In conclusion, multi-agency and multidisciplinary teamworking is crucial in ensuring that patients like Nusrat and Sabha receive the needed support and care throughout the trajectory of their diseases. Importantly, this type of teamworking and collaboration do not only recognise the needs of the patients but also include the health and social care needs of family members and carers. Integrating the care of the carers ensures that family members receive the needed psychosocial support as they navigate the support of family members with long-term and debilitating conditions.

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