The Student Room Group

OCD diagnosis

Is it worth it for me to get an OCD diagnosis? I’ve done a lot of research on OCD and, although I’m not diagnosed, I’ve spoken to people who professionally work with people with OCD and they agree that it’s very likely that I have it.

I’d like a diagnosis to help me feel more secure in myself and I think it would help me to feel less alone when I have intrusive thoughts to be a member of that community.

However I don’t think I need medication or to access any help through a diagnosis as I’ve discovered coping mechanisms through research around OCD and through getting help with my anxiety (which I have already been diagnosed with). I’m also worried that having an OCD diagnosis might impact any jobs or opportunities I’d like in the future as they might not want to consider me if I’m formally diagnosed.

So, since I’d only want a diagnosis for affirmation, is it worth getting one? If anyone who’s gone through the diagnosis process could give any advice, I’d be very grateful :smile:

Reply 1

Original post
by aiua
Is it worth it for me to get an OCD diagnosis? I’ve done a lot of research on OCD and, although I’m not diagnosed, I’ve spoken to people who professionally work with people with OCD and they agree that it’s very likely that I have it.
I’d like a diagnosis to help me feel more secure in myself and I think it would help me to feel less alone when I have intrusive thoughts to be a member of that community.
However I don’t think I need medication or to access any help through a diagnosis as I’ve discovered coping mechanisms through research around OCD and through getting help with my anxiety (which I have already been diagnosed with). I’m also worried that having an OCD diagnosis might impact any jobs or opportunities I’d like in the future as they might not want to consider me if I’m formally diagnosed.
So, since I’d only want a diagnosis for affirmation, is it worth getting one? If anyone who’s gone through the diagnosis process could give any advice, I’d be very grateful :smile:

Hi there!

I hear that you feel like a diagnosis would make you feel more secure in yourself and I completely understand. I think that there is a great deal of hostility towards this idea of 'self-diagnosing' that OCD inherently is more vulnerable to in being a condition that is pretty frequently used insincerely by people who like things to be clean, or who are a little superstitious. However, this is a whole world different from the experience of someone with OCD, as you will know, as a sufferer. In spaces for OCD sufferers, anyone who would ever belittle your experience for lack of a formal diagnosis is simply a malicious person. You know for a fact that you experience intrusive thoughts etc., and that makes you a member of that community, regardless of any nosy, ill-meaning person that might question your 'official title'. You are not alone, to belong to that community, the only checkbox you have to tick is that you relate to the struggles, and that, you've got covered. Countless people in the community are not diagnosed, it's not just you.

Questioning the validity of your own OCD is, in and of itself, an OCD behaviour! 'But what if I don't have it', 'but what if I'm faking it', or 'but what if they don't believe me', these 'what if' are questions that OCD makes you ask! It's the same second-guessing, doubt, and anxiety that perpetuates other OCD behaviours. This is, no doubt, something that people within the community can relate to, even those who have recieved a formal diagnosis. The perception you need to shake is the idea that your OCD is any less real than someone who has it written down by a doctor. You know that your experience is real!

I have been in the same situation of wanting a diagnosis to validate myself and the suffering it has made me experience. I don't have a diagnosis, but I know I have OCD. It's clear, both to myself in my own research and to other professionals, like you say. If I wanted to try medication or a certain treatment, I would go and get a formal diagnosis, but I still recieve amd take part in OCD-focused treatment without a diagnosis. And surprise, the treatment helps... because I have OCD!

I've also worried before about how a diagnosis would affect jobs, but as far as I know I think it only disqualifies you for military/airforce positions etc... Under the Equality Act 2010, someone with very poor mental health can be considered disabled, and thus are protected by law from employment discrimination. This doesn't necessarily mean it can't happen, as an employer would never say 'we're not employing you because you have OCD' obviously. Also, an employer can't demand your medical records, they're confidential and not required to disclose.

Essentially, this is me giving you 100% full permission to consider yourself 'a person with OCD', not 'someone who very very likely has OCD and many professionals agree but isn't diagnosed'. The way that experiences of those with a formal 'diagnosis' are percieved as more 'real' than those without is something constructed by mean, exclusionary and self-important people. You are diagnosed... You tick the boxes, that's what a diagnosis is. Yours is just not formal, whatever thats supposed to mean.

Is the diagnosis for your own self-acceptance, or for the acceptance of other people?

If it's for your own? That's something you can work on without a diagnosis to make you feel more comfortable and secure in your own body, regardless of what a doctor says. Working on this will help you in other places in your life, and if this self-doubt comes from a place of OCD, then it will be a step of the process of beating it :smile:
If it's for other people? Screw them! It's none of their business! Anyone who cares about that isn't someone who has your best interests in mind, and somone who doesn't deserve your time!

Sorry for such a long message, I just relate to what you're experiencing, I hope to have helped a little! 💗

Reply 2

Original post
by Whispurrr
Hi there!
I hear that you feel like a diagnosis would make you feel more secure in yourself and I completely understand. I think that there is a great deal of hostility towards this idea of 'self-diagnosing' that OCD inherently is more vulnerable to in being a condition that is pretty frequently used insincerely by people who like things to be clean, or who are a little superstitious. However, this is a whole world different from the experience of someone with OCD, as you will know, as a sufferer. In spaces for OCD sufferers, anyone who would ever belittle your experience for lack of a formal diagnosis is simply a malicious person. You know for a fact that you experience intrusive thoughts etc., and that makes you a member of that community, regardless of any nosy, ill-meaning person that might question your 'official title'. You are not alone, to belong to that community, the only checkbox you have to tick is that you relate to the struggles, and that, you've got covered. Countless people in the community are not diagnosed, it's not just you.
Questioning the validity of your own OCD is, in and of itself, an OCD behaviour! 'But what if I don't have it', 'but what if I'm faking it', or 'but what if they don't believe me', these 'what if' are questions that OCD makes you ask! It's the same second-guessing, doubt, and anxiety that perpetuates other OCD behaviours. This is, no doubt, something that people within the community can relate to, even those who have recieved a formal diagnosis. The perception you need to shake is the idea that your OCD is any less real than someone who has it written down by a doctor. You know that your experience is real!
I have been in the same situation of wanting a diagnosis to validate myself and the suffering it has made me experience. I don't have a diagnosis, but I know I have OCD. It's clear, both to myself in my own research and to other professionals, like you say. If I wanted to try medication or a certain treatment, I would go and get a formal diagnosis, but I still recieve amd take part in OCD-focused treatment without a diagnosis. And surprise, the treatment helps... because I have OCD!
I've also worried before about how a diagnosis would affect jobs, but as far as I know I think it only disqualifies you for military/airforce positions etc... Under the Equality Act 2010, someone with very poor mental health can be considered disabled, and thus are protected by law from employment discrimination. This doesn't necessarily mean it can't happen, as an employer would never say 'we're not employing you because you have OCD' obviously. Also, an employer can't demand your medical records, they're confidential and not required to disclose.
Essentially, this is me giving you 100% full permission to consider yourself 'a person with OCD', not 'someone who very very likely has OCD and many professionals agree but isn't diagnosed'. The way that experiences of those with a formal 'diagnosis' are percieved as more 'real' than those without is something constructed by mean, exclusionary and self-important people. You are diagnosed... You tick the boxes, that's what a diagnosis is. Yours is just not formal, whatever thats supposed to mean.
Is the diagnosis for your own self-acceptance, or for the acceptance of other people?
If it's for your own? That's something you can work on without a diagnosis to make you feel more comfortable and secure in your own body, regardless of what a doctor says. Working on this will help you in other places in your life, and if this self-doubt comes from a place of OCD, then it will be a step of the process of beating it :smile:
If it's for other people? Screw them! It's none of their business! Anyone who cares about that isn't someone who has your best interests in mind, and somone who doesn't deserve your time!
Sorry for such a long message, I just relate to what you're experiencing, I hope to have helped a little! 💗

Thank you!

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