This discussion is now closed.
Check out other Related discussions
tiger_babe
Hi everyone
Do any of you suffer from M.E.? I think I may have it but I'm not sure... What are the symptoms apart from being tired all the time?
x x x x
Do any of you suffer from M.E.? I think I may have it but I'm not sure... What are the symptoms apart from being tired all the time?
x x x x
You mean Myalgic Encephalomyelitis? (aka Chronic Fatiue Syndrome)
it can have a few other symptoms like mood changes, sleep problems, myalgia (muscle pain) but the main one is tiredness.
And i don't mean "i went out on the town yesterday, and am still tired" tiredness, i mean profoundly disabling tiredness so much that you can hardly move and hardly think half the time (literally 50% of the time).
If you have had that for the last 6 months, then it might be ME
if not, then you might have glandular fever
if not, then u might just be knackered, and need to take it a bit easier!
Hey, I had ME but then mine turned into SLE. ME is so debiltating and doctors are very wary about whether it is an actual illness but luckily I was referred to an ME specialist. I had all of the syptoms for nearly a year, before my ME I was doing sports nearly every night now I do nothing. I can't go to the cinema or anythin. THe main symptoms are overwhelming fatigue, being awake at night but sleeping all day, ( I sleep til 4-5pm) bad muscle and joint pains, unrefreshing sleep and not being able to think straight, the cognitive side I found just as hard to put up with. If you want any help or sum1 to talk 2 PM me 
I've been through it, but beware it can take a long time for a diagnosis of ME.
I've been through it, but beware it can take a long time for a diagnosis of ME.It's not very well advertised, like I said people aren't convinced it's an actual illness
I'm not sure if I have it - other people on here have suggested I have. I've been exhausted - just absolutely burnt out - for the past eight to nine months (which, looking at it, seems ridiculously long). I know it's not college because I can pinpoint to where it started to happen - the last few weeks of August. I wasn't stressed about college at the time (in fact, looking forward to it because it meant I'd be out of the house again after six weeks at home with my mother).
I've been back and forth for blood tests, etc. and...well, I created a topic on this. My reply is probably not exactly helpful so I'll shush.
All I really know about it is that doctors don't tend to like to diagnose it for some reason.
I've been back and forth for blood tests, etc. and...well, I created a topic on this. My reply is probably not exactly helpful so I'll shush
.All I really know about it is that doctors don't tend to like to diagnose it for some reason.
Heya, i've had it for the past 5 years, but it took me over a year to get diagnosed, as my original GP didn't believe in its existance. After she had problems with what ever else it could possibly be, she refered me to a specialist <i had to go privately though, through BUPA>, and he diagnosed me. I went to see him regularly, every 2-3 months for a few years, and now i have an annual appointment. Basically, there's no cure as it has to go away by itself, although i know someone with a very severe case who may never fully recover. Symptoms vary from person to person although it's generally 'chronic fatigue', which is so severe that it's difficult/impossible to understand if you're not a sufferer. I couldn't leave the house for almost 6 months as i was so overwhelmed by the whole tiredness, and i had problems regarding my concentration, appetite and sleep. Although i'm back to normal now, i still get tired from time to time and painful glands <probably stemming from the glandular fever i had previously>. My advice is that if you have problems getting help/diagnosed, persist with it as some GPs can be quite insensitive as it isn't too well known unfortunately 
If you have any questions or want to talk to me about it just PM me
xxxxxxxxxxxxxxx
If you have any questions or want to talk to me about it just PM me
xxxxxxxxxxxxxxx
caffecooki
Heya, i've had it for the past 5 years, but it took me over a year to get diagnosed, as my original GP didn't believe in its existance. After she had problems with what ever else it could possibly be, she refered me to a specialist <i had to go privately though, through BUPA>, and he diagnosed me. I went to see him regularly, every 2-3 months for a few years, and now i have an annual appointment. Basically, there's no cure as it has to go away by itself, although i know someone with a very severe case who may never fully recover. Symptoms vary from person to person although it's generally 'chronic fatigue', which is so severe that it's difficult/impossible to understand if you're not a sufferer. I couldn't leave the house for almost 6 months as i was so overwhelmed by the whole tiredness, and i had problems regarding my concentration, appetite and sleep. Although i'm back to normal now, i still get tired from time to time and painful glands <probably stemming from the glandular fever i had previously>. My advice is that if you have problems getting help/diagnosed, persist with it as some GPs can be quite insensitive as it isn't too well known unfortunately
If you have any questions or want to talk to me about it just PM me
xxxxxxxxxxxxxxx
If you have any questions or want to talk to me about it just PM me
xxxxxxxxxxxxxxx
Can I just highlight the point that the diagnosis of M.E. as any sort of coherent syndrome is still under scientific scrutiny. I really disagree with this sort of private medicine and admittedly i'm a cynic but I belieeve that it is far more likely that doctors will diagnose if they are getting paid privately for it. There was an interestingh piece of rresearch into similar goings on in the "ed-psych market" a few years back. Furthermore I would argue that if a GP doesn't diagnose it has nothing to do with his or her sensitivity but more to do with them being scientifically scrupulous. I have to disagree with your somewhat generalised and harsh characterisation of the NHS etc.
MB
I got diagnosed by an NHS Doctor, well specialist.. I agree about the private thing though, it is a farce because you get the same diagnosis same treatment. I went to see a consultant and it cost me £125 so never again.
I can see what you guys are saying but if you do your homework and research the doctors there are some very good ones out there.
I was diagnosed privately as a referal to the NHS doctor at the M.E / CFS clinic had a 2 1/2 year waiting list. It took me over a year to be diagnosed as it was and I saw an M.E specialist.
These specialists do work for the NHS too but why shouldn't they make some money on the side from people who don't want to or can't afford to sit around for 2 1/2 years to even find out what is wrong with them before even thinking about a cure or treatment????? Yes you get the same diagnosis and the same treatment but you don't wait as long for it!
When you feel so gravely ill and NOONE can even give you any answers what are you supposed to do? Yes they are expensive. I have seen a private doctor for the last 5 years. I come from a non wealthy back ground and have had to self finance through savings from when I was working but it has been worth every penny!
Don't judge us - there are often no other choices for most M.E people!!!!! Yes the NHS has its place but sometimes you just can't wait for them to find time to see you!!
I was diagnosed privately as a referal to the NHS doctor at the M.E / CFS clinic had a 2 1/2 year waiting list. It took me over a year to be diagnosed as it was and I saw an M.E specialist.
These specialists do work for the NHS too but why shouldn't they make some money on the side from people who don't want to or can't afford to sit around for 2 1/2 years to even find out what is wrong with them before even thinking about a cure or treatment????? Yes you get the same diagnosis and the same treatment but you don't wait as long for it!
When you feel so gravely ill and NOONE can even give you any answers what are you supposed to do? Yes they are expensive. I have seen a private doctor for the last 5 years. I come from a non wealthy back ground and have had to self finance through savings from when I was working but it has been worth every penny!
Don't judge us - there are often no other choices for most M.E people!!!!! Yes the NHS has its place but sometimes you just can't wait for them to find time to see you!!
I wasnt judging lol there are some very good private doctors but these doctors also run NHS clinics.. My renal consultant i orginally saw in private, he then rushed me up his queue for the NHS clinic so I dno, mixed feelin abwt private.. Although you do need to seek out an ME specialist
ME (Myalgic Encephalomyelitis) is classed as a neurological condition by the WHO. The general consensus is that it’s caused by a virus/bacteria/vaccine/toxin. There is a condition known as chronic fatigue, but that is classed as psychological and has very little to do with ME. It is here that psychiatrists muddied the waters and started mixing ME with chronic fatigue, trying to turn ME into a psychological illness – which it definitely isn’t. And because of them there are doctors who are wary of diagnosing it, or just do not believe in it. Fortunately I had a doctor that did believe in it.
My ME started with a bacterial infection (atypical pneumonia) and that was over six years ago. For the first year I was really bad, basically couldn’t get out of bed, and this isn’t uncommon as there are quite a few ME sufferers out there who have been bed bound for years, and some have to be tube-fed. One of my worst symptoms now is the constant headache that I have had for the last six years.
Regarding the symptoms of ME, it is not just chronic fatigue (which is a severe understatement):
Although primarily neurological, sufferers also experience significant problems in virtually all bodily systems. Symptoms may be manifested by cardiac, cardiovascular, immunological, endocrinological, respiratory, hormonal, gastrointestinal and also musculo-skeletal dysfunctions and damage (Marshall & Williams 2005, [Online]). A comprehensive list of the symptoms can be found here.
A lot of bio-medical research into it has shown genetic, brain, cardiac, immune, cell apoptosis (cell death) abnormalities in people suffering from ME. Unfortunately the government still insists on pouring money into psychiatric treatments etc, which do not work, and more often than not, make the sufferer worse.
Sorry for this long post, it’s just that I feel very strongly about this subject, and the fact that ME sufferers are so often forgotten or written off as lazy or mentally ill. And I’ve probably gone slightly off topic…
My ME started with a bacterial infection (atypical pneumonia) and that was over six years ago. For the first year I was really bad, basically couldn’t get out of bed, and this isn’t uncommon as there are quite a few ME sufferers out there who have been bed bound for years, and some have to be tube-fed. One of my worst symptoms now is the constant headache that I have had for the last six years.
Regarding the symptoms of ME, it is not just chronic fatigue (which is a severe understatement):
Although primarily neurological, sufferers also experience significant problems in virtually all bodily systems. Symptoms may be manifested by cardiac, cardiovascular, immunological, endocrinological, respiratory, hormonal, gastrointestinal and also musculo-skeletal dysfunctions and damage (Marshall & Williams 2005, [Online]). A comprehensive list of the symptoms can be found here.
A lot of bio-medical research into it has shown genetic, brain, cardiac, immune, cell apoptosis (cell death) abnormalities in people suffering from ME. Unfortunately the government still insists on pouring money into psychiatric treatments etc, which do not work, and more often than not, make the sufferer worse.
Sorry for this long post, it’s just that I feel very strongly about this subject, and the fact that ME sufferers are so often forgotten or written off as lazy or mentally ill. And I’ve probably gone slightly off topic…
Latest
Trending
Last reply 1 month ago
How can I apply for university and get my letters without my parents finding outLast reply 1 month ago
Dealing with and keeping lies to my aggressive parentsLast reply 1 month ago
(Serious) How do I get rid of weird feelings with my boobs and femininity?Last reply 1 month ago
For those of you who have younger cousins or nieces and nephews why do you do this?Fitness
6
8
Last reply 1 month ago
People who claim to wash in 5mins aren’t showering properlyLast reply 1 month ago
2024 has been a horrible year for me overall and I just wanted your thoughtsLast reply 3 months ago
My friend might be getting extra time and i hate it.
