Chronic Fatigue Syndrome/M.E. SocietyWatch
I did some research this week and linking my symptoms to the CFS; its possible I have Autonomic Dysfunction to add to my list of problems cos most of them I relate to. http://heavenleigh412-ivil.tripod.com/id23.html
I'm walking to college each day and it's really draining me, the bottom of my legs/calves are in constant searing pain and it's agony. Is it worth going for a massage at the college? Because I have to walk home I don't want to make things worse
OMG i have all these symptoms, every one of them, but i thought it was because of depression. maybe i should get it checked out. but i'm probably being paranoid. thanks for replying.
I was wondering if anyone here would be able to give me some advice as I have a family member who is diagnosed with ME/CFS last year. They don't have trouble falling asleep however for a few months now they have woken up several times during the night which has meant they haven't got enough deep sleep. This is quite sad for me to see because they had started to make a recovery before this began. If anyone has any information or advice (apart from sleeping tablets) I'd be very grateful.
I was also wondering if anybody would know of any kind of core exercises that would build strength/fitness for someone M.E? I found swimming too draining, i really wnjoy riding but find i need to build up as its such an intensive workout for me. Would pilates/yoga be beneficial? Any replies gratefully recieved as i'd like to compete again next year and look good in my christmas dance dress.
I am thinking of doing it also. But if you haven't exercised for a while, Yoga or Tai Cai might be a better option.
Right now I am finding university impossible (actually everyday life things let alone studying and working). And I am considering dropping out completely. But I have already completed 3 yrs and am now in my final year. So to leave so close to the end is a bit heartbreaking and so difficult to make the decision to walk away and waste those long hard 3 yr of work!
I have just recently been diagnosed with M.E, even though I have had it more than a year now. Last October was when I first got sick, out of the blue, no virus no nothing. By February, after months of being bedbound, I finally went to my tutor and I got some time off, I withdrew temporarily for the rest of academic year. That should have been my final year at uni, but gradually I got better and by end of summer I felt about 85-90% my old self again, and in September just gone I re-enrolled to restart my final year from scratch.
My course is an NHS course, and half my time is spent on clinical placement. It has been the clinical placement aspect that has destroyed me again. Because pacing myself and not overdoiong has proved impossible. Each week that passed Ive got worse and worse, and now 4 weeks in, I've completely relapsed again. Im back to where I was this time last year, endless doctors visits and tests, and not being to do anything anymore.
I'm at a complete lost right now as to what to do. Any advise or tips on how others deal and balance to two would be amazing right now.
Thanks and sorry for such a long post!
I never had any problems with anxiety before I started getting ill but over the last year and half its been getting worse. I just hope this group session is actually some help to me and that the anxiety won't take over!! :/
Does anyone have any tips for staying awake?
At the moment I'm just refraining from sitting on my bed outside of sleep hours.
I got diagnosed with M.E. 2 years ago, at the end of my first year of uni. I've always been tired, lacked energy and had pains but put them down to also having diabetes, actually the one symptom I never linked to anything but thought was odd was leg twitching!
I had chest pains which I put down to being on iron tablets too, so as you can see I had 'reasoning' behind things but they weren't actually true! My Dr was good enough to see past everything and diagnose me, the main thing were the headaches which didn't go after being treated for anemia, only my waking up headaches did! I have had headaches for 2 weeks each day!
Before I was diagnosed about 2 years previous I used to come home from college at 6 and be in bed by 9... I thought I was just tired from long days but then now I look back and see that stressing because I was too tired to put things away before bed or crying cause I couldn't wash my hair - it wasn't normal. I only had college 2.5 days a week so really it was minimal and the change from this to uni, mainly doing everything for myself i.e. cooking, cleaning, shopping, was certainly the last straw.
I cope with it okay, sometimes i'm in pain or have headaches but I just put up with it. It does get to a point where I have too much uni work and simple things like washing/eating properly go out the window which is clearly a problem especially needing a balanced diet for my diabetes. I manage to go out clubbing, but it will knock me out for a couple days afterwards with pain and fatigue. I usually walk to town a couple of times a week though often get bus back and obviously to uni which is 4 times a week, currently having issues with group work as I don't like to go in when I don't need to :\. Brain fog can be a massive thiing, it hit me hard at the end of my exams last year I totally panicked as I still had 3 pieces of work to do! Luckily I got extension but through my dr so it cost me - but now i'm in touch with the disability office they say they can help there.
I have Cognitive Behavioural Therapy at the moment, I find the time management, planning things helpful but i'm not sure about all of it! It has helped me sort my sleep pattern which definitely helps personally I think. At uni i'm supposed to be getting an academic mentor which might really help, not sure when though :\ I've just got eligibility for DSA as well, not sure what i'll get from that.
If anything I feel as though i've been like this throughout my late teen years so everything i've done has been minimal anyway. I never got to party loads then have it taken away from me etc, you get what I mean... But I do look back at how I used to be before GCSE times like dancing/music school/guiding/volunteering and what I do now is limited. My big problem is socialising, I really feel i've missed out especially at uni, I just don't have as many friends as I see my friends back home do That gets me down.
Is there a solid way to diagnose this?
i feel exhausted for the first few hours of the morning, like absolutely exhausted as i brush my teeth and am awake for the first few hours.
Then i feel more energetic during the middle-later part
Unlikely they didn''t do an FBC if doing other bloods, so one would suspect normal white cells.
I can't remember ever giving someone a single B6 shot. Its highly bioavailable and in good amounts in most food. One might suggest a daily banana.