Chronic Fatigue Syndrome/M.E. Society

Yep. Sometimes feels like I'm stuck in a bubble so to speak.



Ah sorry to hear that I went through exactly the same as you, it felt like I'd lost all my friends because of being ill.

It probably sounds daft lol, but when you say about feeling too poorly to talk, I often literally just switch off mid conversation, like my brain just stops and I can't remember what I was even talking about This is often taken the wrong way as though I'm not listening, and if I don't talk much it come across as moodiness, but I explained everything and it's taken as the 'foggies' lol.

Best thing to do is just be open about it, and just mention that you're not feeling great and that's why you haven't spoke much, tell them it's nothing personal.

.

Aw bless your fry up mate! That's just sweet!

Has this become the M.E society now officially?

I know exactly how you feel. i had extremely close mates, who made all sorts of promises. but the second I wasnt there as much as they needed me to be. they lost intrest. bein a bloke was even tougher, guys tend to have an inability to understand other peoples problems unless they had experience them themselves.
One of my mates, a guy im still in touch with suggested I have a fry up each morning, because to try and get him to understand i said i felt permanently hungover with no night out!!
thankfully i have a girlfriend who appreciates the strong silent type. so me not me not talking much translates to me being a great listener lol.

LOL

Yeah, I don't tend to talk much about how I feel, which comes across to some of my friends as being distant or pushing them away But it's not, tis just the way I am really lol.

Oh, I went psych and was put on anti-ds I don't feel that great inside about it al tbh but meh think this is a bit much? And she reckons I've been depressed for about three years from what i said about how I used to be

But meh, how's everyone? x

f u dnt mind me askin midears what exactly have they given you to take

ive been attempting to read a little more into the effect of Anti Ds on M.E sufferers particularly in regard to Hypersensitvity an pain management. gettin v mixed info. but i will post some links up soon.

personally i didnt take well to the anti Ds. they elevate mood less than they, sortuve flatten everything out.
you dont feel so bad, but you cant feel too good either !

Just painkillers and resting up really. I'm a bit as to how to deal with it properly though, as my pain only seems to ease a little too.

Soft massages are nice for the muscle pains though

Im glad the meds are working out blink
im med free...ish at the moment. not going well.
so used to hobbling around i have walking stick collection!
but at least im uniquely identifiable at college lol

This is my first post on this forum. I’ve been diagnosed with M.E./C.F.S. although I don’t think this really counts for much since this is very much dependent on what doctor you see, and I had to see several to get this diagnosis. This makes me wonder sometimes whether I have it. Looking over this forum I certainly recognise the descriptions of brain fog, and my results during university have steadily decreased. I do a Maths degree, and although I can still understand the broad concepts and ideas I find the calculations very difficult. These days I even have some difficultly counting money at the shop.

However compared to most people on this forum I don’t seem to have anywhere near the same levels of tiredness. I even play 5 a side football with my dad when I come back home for the holidays, although I have nowhere near the level of fitness that I used to have.

I was just wondering if anyone else on this forum had a similar profile of symptoms to me. Sometimes I feel like a fake when I compare myself to the sufferers I sometimes see on the news.

Had my first appointment at the clinic earlier this week (yay!) and feel pretty positive about getting over all of this and getting back to how i was before. However, just wondered has anyone got over it and relapsed since going to uni cos i'm not a bit worried that i'll improve loads and then ruin what i've managed to achieve.
Hope everyone is feeling alright

Fluoxetine, 20mg.


So far, it's been nausea and headaches. Completley lost my appetite mind, I forget to eat now! But it's not too bad, seems to be settling and I've been on them about a week

The muscle aches seemed to have dulled a little and my back pains have calmed down a bit, but not majorly. But hey, early days.

...

Hey

I'm still on it now - as if it's been a year!
It's helped a lot for the majority of the time, my concentration's been much better. I've felt better although I've still had relapses, they've calmed down and they're much less often now. The aches are still there, but again not so bad most of the time. I'm on 40mg now, they tend to up it after a while.

I'm not 100%, but day to day it's gotten easier - I'd give it a try

P.S - I tried cutting down on the sugar and yeast, and surprisingly, after a couple of weeks it helped too with regards to the energy and fogginess. Cutting out on bread and switching sugar to honey was how I started.

Ah that's good to hear charla How is everyone getting on now then? Hope you're all good! x