I just don't feel like it's been explored enough. I've got all the symptoms, but then joint pain, exhaustion etc can be the cause of a lot of things.
I just feel it's too easy to go 'oh we can't find anything wrong from blood tests etc' it must be ME.
Don't get me wrong, I truly believe in ME and it's sufferers, I just worry that it can be used almost as an excuse...that's not the right word, but I don't personally feel like my doctor has excluded everything
You're meant to have ME when they've excluded everything else. Unless I get brain scans etc etc, I don't feel like we've got to that diagnosis correctly.
I mean, what if I get 20 years down the line thinking I have ME and then finding out I had some kind of benign brain tumor that could have been nipped in the bud, or a swilling under my spine where you can't see it from the skin....
my medical knowledge isn't good, but do you see what I mean? ME is so awful, that I want to know for certain it's what I've got and that it's not something which can be 'cured'. If I found out years down the line thatg I didn't have to suffer like this, I don't think I'd forgive myself or my doctors. Same goes for if it's not ME and it gets worse and past treatment, whereas it could have been treated at this age. I dunno.