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Sle

Recently been diagnosed with systematic lupus.. kind of turned my world upside down. I was an active 17 year old, doing every sport under the sun, but now I just lay in bed because I can't do anything without getting tired. It's causing so much tension in my house. I feel helpless in the world, I can't walk very well and theres times I can't walk at all, so school is a major challenge for me and I'm very worried about Uni's not accepting me.
Just wondered if there was any other sufferers on here?

Reply 1

Mrs_F

15

Really sorry to hear that.
I don't know anthing about it - but I wouldn't have thought uni's would be allowed to hold it against you.

Hope things work out good for you. :smile:

Reply 2

Fluffy

15

One of the girls in my year from my first degree had SLE. It meant that she had to take things a lot easier and often had to take 'out years', but she got there in the end.

Don't give up, I'm sure you'll find many unis will be very accommodating - and if they're not, throw the disability discrimination act at them and sue em!

Good luck!

Reply 3

Monteferro

Is there a cure for it? I hope you'll be able to overcome it fairly soon.

Don't worry about uni's not accepting you, the only things they look at are your grades, your personal statement and your teachers' references. And if you can't walk at all, get someone to carry you! :smile:

Reply 4

Fluffy

15

Monteferro

Is there a cure for it? I hope you'll be able to overcome it fairly soon.

It's an autoimmune disease. The body recognises itself as foreign and attacks itself.

Reply 5

happydinosaur

15

Cheeky_Lickle_H

Recently been diagnosed with systematic lupus.. kind of turned my world upside down. I was an active 17 year old, doing every sport under the sun, but now I just lay in bed because I can't do anything without getting tired. It's causing so much tension in my house. I feel helpless in the world, I can't walk very well and theres times I can't walk at all, so school is a major challenge for me and I'm very worried about Uni's not accepting me.
Just wondered if there was any other sufferers on here?

I hope everything works out ok for you concerning uni..I have suffered some medical problems which I didn't mention on my application form but it was mentioned in my reference and a few unis (Warwick were very good so deserve a mention) picked up on it and forwarded a copy of my application to their disability offices who emailed me to ask questions and see if there was anything they could do and this was for a past condition that doesn't really affect me anymore so hopefully anywhere you chose shall be very accomodating!! Good Luck

Reply 6

naelse

15

my mother has lupus and so does my best friend at uni. my mother has had a much worse time of it- basically every organ has shut down at least once in the last 10 years. my friend at uni is young like you (she's 19) and she just suffers from the fatigue and occasional joint pain. i know that it's bad enough itself but try to think positively. They've caught it relatively early and so they can try to prevent things getting as far gone as they are with my mother. Don't worry about Uni not accepting you- that won't happen and if it does then you're within your rights to sue. But do let them know when it comes to things like interviews and sorting out accomodation so that they can minimise stairs etc for you. Feel free to PM me if you want any Lupus advice. And I recommend that you get in contact with Lupus UK.

Reply 7

Cheeky_Lickle_H

OP

Thanks everyone :smile:

My kidney shut down because of my lupus so it made things alot harder but keep smiling.. I'm looking forward to Uni.

Reply 8

rainjan_4now

2

Cheeky_Lickle_H

Recently been diagnosed with systematic lupus.. kind of turned my world upside down. I was an active 17 year old, doing every sport under the sun, but now I just lay in bed because I can't do anything without getting tired. It's causing so much tension in my house. I feel helpless in the world, I can't walk very well and theres times I can't walk at all, so school is a major challenge for me and I'm very worried about Uni's not accepting me.
Just wondered if there was any other sufferers on here?

my cousin and her mother are both sufferers. My cousin is 18- and she sufferers from lupus worst when its cold- she becomes rashy and it brings on rheumatism, which makes her unable to move.

however- she is still very active in the meantime (when she doesnt have to endure the pain of her lupus), and she regularly takes steroids to help her with the pain.

very sorry to hear that you have have the added pressure of family tension on top of your lupus, i guess because the condition is so rare they don't really know how ill you're supposed to be.

Reply 9

Cheeky_Lickle_H

OP

yeah over time my family and friends are tryin 2 understand what it means, its a long time coming mind but I guess things come to those who wait

Sle

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