The Student Room Group

Just thought i'd share this

I want everyones opinions on this.

When i was 7 years old i woke up one morning really really dizzy. i cant rmember much else cuz it was so long ago but, I remember was being taken into the hospital and they told me that i had tinnitus in both ears and was almost completly deaf! (i could hear perfectly before) nothing i did before that day couldve iniciated this other than having a jab a week before (mmr or something along those lines) or going to a disco.

Im 18 now and ive had to live with this all this time. Im a perfectly normal person just with one hearing aid. i have a great life and great boyfriend, going to uni etc etc.

the thing that bothers me is that the doctors have no idea why this has happened to me! has anyone heard anything at all, or what do u recon couldve caused it? it completly baffles me, theres no history in the family of it and im a perfectly healthy person.... :frown:

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Reply 1

I'm not sure, but could it have been a side affect of the MMR? I know it caused alot of controversy and that may be why the doctors never identified a cause as such, because they wanted to cover it up.

Reply 2

Without wishing to sound harsh Cazzi if Specialist Consultants with access to range of investigations and their results are unable to make a diagnosis - the chance of anybody on here being able to provide the answer is extremely extremely unlikely.

As for the MMR - there is no link between the MMR and deafness. Furthermore, no dose of MMR is given at the age of 7 - so this is really not a helpful suggestion.

Reply 3

Don't know if this is of any help to you....
http://www.bixby.org/faq/tinnitus/discover.html#causes

Sometimes things just happen and doctor's don't know the causes of them...frustrating I know but just a fact of life I suppose, we don't have all the answers.

Perhaps something to consider would be to get in touch with people who are in a similar situation, I'm sure there are tinnitus organisations online where people can share experiences.

Ruthie xx

Reply 4

ruthiepoothie
Don't know if this is of any help to you....
http://www.bixby.org/faq/tinnitus/discover.html#causes

Sometimes things just happen and doctor's don't know the causes of them...frustrating I know but just a fact of life I suppose, we don't have all the answers.

Perhaps something to consider would be to get in touch with people who are in a similar situation, I'm sure there are tinnitus organisations online where people can share experiences.

Ruthie xx


i know that its pretty useless....suppose im hoping someone on here has experienced the same sorta things or knows someone who has. it just been really gettin to me recently. i just wanna be normal :frown:

Reply 5

Ataloss, sorry it's just she said she remembers having a jab possibly MMR before it happened. Didn't mean to give bad advice.

Cazzi_bear, i know it must feel bad especially as they don't know what it was caused by. But you are just as 'normal' as everyone else. There is no such thing as 'normal' in this world. Everyone has something about themselves they want to change and noone is perfect. Have you seen a specialist about it if the cause is still bothering you? *hugs* x luv lil_crazyflakes

Reply 6

lil_crazyflakes
Ataloss, sorry it's just she said she remembers having a jab possibly MMR before it happened. Didn't mean to give bad advice.

Cazzi_bear, i know it must feel bad especially as they don't know what it was caused by. But you are just as 'normal' as everyone else. There is no such thing as 'normal' in this world. Everyone has something about themselves they want to change and noone is perfect. Have you seen a specialist about it if the cause is still bothering you? *hugs* x luv lil_crazyflakes



i do remember seeing a specialist when i was bout 10 in nottingham, he was just as clueless...i just refuse to accept there is nothing i can do about it!lol

Reply 7

It`s all good. I`ve got tinitus too and have been recently finding out through random chats with various friends that a suprising number of them/people they know have it too. Sometimes there`s no reason. You can get stuff to help - crazy whale music to "relax" etc.
My gran`s got it too but she has musical hallucunations - they make family occasions amusing!

Reply 8

i that occasionally and omg it pisses me off so much. i feel for u *hugs* :smile:

Reply 9

lessthanthree
Why's it suddenly starting to get to you, this "wanting to be normal"? -nobody's said anything, have they?


its definatly perminant, without my hearing aid i cant hear a thing! :frown:

ah welz.ive always wantedto be 'normal' because i used to be, if youre born with it you wouldnd know any other way, but i can still remember being able to hear. the fact was i was so popular when i was little, then suddenly i became deaf, i became a shy, scared little girl and its been hardto shake that off :frown:

Reply 10

:frown: I can only imagine what that must be like. It must have really knocked your confidence. But you shouldn't feel that it should hold you back any more. People like you as a person regardless of whether you have a hearing aid or not. I know there are some ignorant idiots out there, but the kind of people you want to know will love you for just being you. So chin up :smile:

Reply 11

lil_crazyflakes
:frown: I can only imagine what that must be like. It must have really knocked your confidence. But you shouldn't feel that it should hold you back any more. People like you as a person regardless of whether you have a hearing aid or not. I know there are some ignorant idiots out there, but the kind of people you want to know will love you for just being you. So chin up :smile:



yeh i know, its nice to know so many people are so supportive of it :smile: my bf dosent give a damn, in fact he says i wouldnt be cazzi without it! lol

Reply 12

Does anyone know if tinnitus counts as a hearing impairment - just thinking for when i have to fill in various forms...?
:confused:

Reply 13

Cazzi_Bear
yeh i know, its nice to know so many people are so supportive of it :smile: my bf dosent give a damn, in fact he says i wouldnt be cazzi without it! lol

Exactly, it makes you kind of unique. It is part of you now and you obviously have people who care about you and love you just the way you are :biggrin: The rest of them just aren't worth your time of day x

Reply 14

av-2003
Does anyone know if tinnitus counts as a hearing impairment - just thinking for when i have to fill in various forms...?
:confused:


it deff does!!! im profoundly deaf and have tinnitus...i cant hear a thing without a hearing aid

Reply 15

lil_crazyflakes
Exactly, it makes you kind of unique. It is part of you now and you obviously have people who care about you and love you just the way you are :biggrin: The rest of them just aren't worth your time of day x


thanks...made me feel better, i was just having a downer day

Reply 16

So does it count as a disability???

Reply 17

av-2003
So does it count as a disability???

It affects everyone in different ways. If you've had to develop ways of coping it that "normal" people don't have to do, like lip reading, or if you've stopped doing things because of it, then yes.

If you think it's a disability then it is.

Reply 18

Cazzi_Bear
it deff does!!! im profoundly deaf and have tinnitus...i cant hear a thing without a hearing aid


Sorry to hear that Cazzi Bear (pun wasn't intended I promise!:smile:) I was born deaf and wear 2 hearing aids, like u I can't hear anything without them in (had maintenance man walk into my room last week when i was getting dressed...embarrassment..never heard knock!) I guess I get along OK...just difficult in bars and pubs etc! have u ever looked at the RNID website shop? so many useful little things to make life easier (vibrating alarm clocks etc) and there'a a tinnitius sleep thing for helping tinnitius suffers get to sleep, one of their top sellers :smile: www.rnid.org.uk

PM me if you wanna chat! :smile:

Reply 19

its most definatly a disability! i get 60quid a month allowance for it!