Hi everyone, I'm asking this question out of personal interest. I'm just about to start my first year of uni, and among other things I'm an M.E sufferer. Unfortuntely I've heard a couple of horror stories from others who have M.E where people they're living with don't believe they're ill (I actually have had that problem at my old school, which completely contrasted with nice understaing people at my second school!). I'm worried that if I live with people like the former they could actually have a negative impact on my health, as I really need to sleep a lot.
The thing I think about M.E is you look fine, (unless you're really bad and in a wheelchair). People can only really see there's anything visibling wrong with me is when my muscles start to shake due to weakness and I don't usually overdo things to the point that I get to that state. My parents help me with little day to day things like quite often I'm not up to filling up a kettle and making a hot drink by myself and I don't know if people will look at me like I'm crazy if I ask for help etc (I am currently applying for disability living allowance so I'll be able to employ someone to help me do some things, but I doubt they'll be with me for much of the day and that's if my claim doesn't get rejected!)
I don't usually like letting people know there's anything wrong with me because of what happened at my old school, but I think the special ergonomic equipment in my room is going to be a bit of give away!
So I guess what I'm asking is, what would your reaction be to living with someone like me in halls? If someone looks fine, do you take that at face value and won't believe anything to the contrary?