Dizziness
Hey
I have being suffering with dizziness now since January 2015 - August. At first they thought it was Labrynthitis and they prescribed me Prochlorperazine. It has helped and made my dizziness much better for all this time but the last week the tablets haven't seemed to be working.
I am currently under the NHS but they can't seem to find the problem and keep you waiting for weeks and weeks to go back for a little test. In the last week the tablets haven't really being touching it and i am feeling much worser than i did in the start of the illness in January. I have being feeling dizzier than i did and i am starting to feel quite sick. The doctor recently prescribed me 'Betahistine' And i would like to know if they work well and what i could have wrong with me.
I am a 17 year old kid and it's keeping me house bound really for the past 7 months and starting to depress me.
I have being suffering with dizziness now since January 2015 - August. At first they thought it was Labrynthitis and they prescribed me Prochlorperazine. It has helped and made my dizziness much better for all this time but the last week the tablets haven't seemed to be working.
I am currently under the NHS but they can't seem to find the problem and keep you waiting for weeks and weeks to go back for a little test. In the last week the tablets haven't really being touching it and i am feeling much worser than i did in the start of the illness in January. I have being feeling dizzier than i did and i am starting to feel quite sick. The doctor recently prescribed me 'Betahistine' And i would like to know if they work well and what i could have wrong with me.
I am a 17 year old kid and it's keeping me house bound really for the past 7 months and starting to depress me.
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Sorry you're struggling with this, being constantly dizzy is horrible! I've had similar problems in the past (and to a lesser extent still do) and found prochlorperazine helpful but I couldn't think straight at all with it- as this is something I struggle with anyway it made it unbearable! Betahistine I found much less effective, better than nothing but it only really took the edge off it- medication works differently for different people and problems though so that doesn't mean you won't. Pretty sure I tried a third one at some point but I can't remember what it was.
No-one here can diagnose you obviously, I have problems with my ears anyway and a combination of that and a virus which went on to cause CFS and possibly POTS (something you could look into? I'm not sure) was probably what caused it so intensely for me. I hope they manage to work it out for you soon though, it can't be nice.
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No-one here can diagnose you obviously, I have problems with my ears anyway and a combination of that and a virus which went on to cause CFS and possibly POTS (something you could look into? I'm not sure) was probably what caused it so intensely for me. I hope they manage to work it out for you soon though, it can't be nice.
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Original post by furryface12
Sorry you're struggling with this, being constantly dizzy is horrible! I've had similar problems in the past (and to a lesser extent still do) and found prochlorperazine helpful but I couldn't think straight at all with it- as this is something I struggle with anyway it made it unbearable! Betahistine I found much less effective, better than nothing but it only really took the edge off it- medication works differently for different people and problems though so that doesn't mean you won't. Pretty sure I tried a third one at some point but I can't remember what it was.
No-one here can diagnose you obviously, I have problems with my ears anyway and a combination of that and a virus which went on to cause CFS and possibly POTS (something you could look into? I'm not sure) was probably what caused it so intensely for me. I hope they manage to work it out for you soon though, it can't be nice.
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No-one here can diagnose you obviously, I have problems with my ears anyway and a combination of that and a virus which went on to cause CFS and possibly POTS (something you could look into? I'm not sure) was probably what caused it so intensely for me. I hope they manage to work it out for you soon though, it can't be nice.
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Seems this forum attracts a number of us CFS sufferers
Looking at getting tested for PoTS myself as well after relating to what PoTS sufferers I've talked to have told me about their symptons.Original post by WoodyMKC
Seems this forum attracts a number of us CFS sufferers Looking at getting tested for PoTS myself as well after relating to what PoTS sufferers I've talked to have told me about their symptons.
Looking at getting tested for PoTS myself as well after relating to what PoTS sufferers I've talked to have told me about their symptons.It does! Not that that's anything to celebrate particularly but at least we're not alone with it
yeah I'm the same with PoTS, my GP initially told me he'd never heard of it, then it didn't exist, then I might have it so who knows, maybe I'll get a diagnosis (or at least a proper test) at some point! Posted from TSR Mobile
Original post by furryface12
It does! Not that that's anything to celebrate particularly but at least we're not alone with it yeah I'm the same with PoTS, my GP initially told me he'd never heard of it, then it didn't exist, then I might have it so who knows, maybe I'll get a diagnosis (or at least a proper test) at some point!
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yeah I'm the same with PoTS, my GP initially told me he'd never heard of it, then it didn't exist, then I might have it so who knows, maybe I'll get a diagnosis (or at least a proper test) at some point! Posted from TSR Mobile
Indeed, never necessarily nice to meet someone else going through health problems but it's great to have others to relate to at the same time
My GP went down the "I don't know what I'm doing, I'll pass the buck" route, I'm awaiting my ME/CFS clinic appointment and the doc's just gonna let them sort it haha. I used to LOVE the summer and thought the hotter the better, but I've developed a proper heat intolerance over the past few years.Original post by WoodyMKC
Indeed, never necessarily nice to meet someone else going through health problems but it's great to have others to relate to at the same time My GP went down the "I don't know what I'm doing, I'll pass the buck" route, I'm awaiting my ME/CFS clinic appointment and the doc's just gonna let them sort it haha. I used to LOVE the summer and thought the hotter the better, but I've developed a proper heat intolerance over the past few years.
My GP went down the "I don't know what I'm doing, I'll pass the buck" route, I'm awaiting my ME/CFS clinic appointment and the doc's just gonna let them sort it haha. I used to LOVE the summer and thought the hotter the better, but I've developed a proper heat intolerance over the past few years.Yeah exactly. I've just been referred to the ME clinic too (had it just over two years) and cardiology, the second one being unrelated but I'll ask about PoTS while I'm there probably. Yep, I'm the same! It makes everything worse, dizziness especially.
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Original post by furryface12
Yeah exactly. I've just been referred to the ME clinic too (had it just over two years) and cardiology, the second one being unrelated but I'll ask about PoTS while I'm there probably. Yep, I'm the same! It makes everything worse, dizziness especially.
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About the same really, well, it's gradually came on over the past 4-5 years but a couple of years ago it went from mild to moderate.
I've taken to just driving around for a bit of fun on these hot days, can't do much else besides stay indoors so it can be quite fun just cruising around, bit of music on, air con keeping me nice and cool. Can't drive for more than a couple of hours as it gets mentally exhausting but it's fun while it lasts. Only used to be able to drive for about an hour when I used to drive manual, but since I started driving an automatic which requires a bit less brain power I find myself being able to drive more which is great
Do genuinely find automatic more fun to drive as well.Whats weird is that since i was a young child from 2-3 all the way upto now I have got Ear Infections in the same eat atleast once or twice a year. Now I have still got worser problems after all these years.
I wanted to know because i have being taking 'Betahistine Dihydrochloride' Now for a few days 4-5 and it hasn't had any effect so i was going to see if the doctor could prescribe me something else for it.
The ENT Specialist said i could have Damage in my inner ear and gave me some exercises to peform and at first it was fine i could do them. But in this past week it has just got worse from what i originally had all those months ago. I was wondering if i could have damaged my ears more.
I was also wondering are there any quick things i could have done, Steroids, Medication or Surgery to help me because i have being suffering for months and months and recently with it getting worse it is just stressing me and making me depressed because i am only 17 and i can't do anything. I can't go out with friends, can't drink alcohol, can't do fun things and be a teenager. It's slowly killing me and depressing.
I wanted to know because i have being taking 'Betahistine Dihydrochloride' Now for a few days 4-5 and it hasn't had any effect so i was going to see if the doctor could prescribe me something else for it.
The ENT Specialist said i could have Damage in my inner ear and gave me some exercises to peform and at first it was fine i could do them. But in this past week it has just got worse from what i originally had all those months ago. I was wondering if i could have damaged my ears more.
I was also wondering are there any quick things i could have done, Steroids, Medication or Surgery to help me because i have being suffering for months and months and recently with it getting worse it is just stressing me and making me depressed because i am only 17 and i can't do anything. I can't go out with friends, can't drink alcohol, can't do fun things and be a teenager. It's slowly killing me and depressing.
Also i would like to know what tablet there are that would take the dizziness away while i wait?
I took Prochlorperazine for 6-7months and they don't really touch the dizziness anymore but worked really well. I currently take Betahistine Dihydrochloride but they don't touch it what so ever, So i'd like to know what could help??
I took Prochlorperazine for 6-7months and they don't really touch the dizziness anymore but worked really well. I currently take Betahistine Dihydrochloride but they don't touch it what so ever, So i'd like to know what could help??
Original post by Lewis0015
Also i would like to know what tablet there are that would take the dizziness away while i wait?
I took Prochlorperazine for 6-7months and they don't really touch the dizziness anymore but worked really well. I currently take Betahistine Dihydrochloride but they don't touch it what so ever, So i'd like to know what could help??
I took Prochlorperazine for 6-7months and they don't really touch the dizziness anymore but worked really well. I currently take Betahistine Dihydrochloride but they don't touch it what so ever, So i'd like to know what could help??
My mum used to take betahistine but said it was useless - she now swears by stemitil (prochlorperazine) though she doesn't take them continuously for prolonged periods - she lives in fear of them losing their effectiveness - my mum has MS.
Hope you get some answers soon
The way you get messed around for a diagnosis is awful.Original post by AmyPilot
My mum used to take betahistine but said it was useless - she now swears by stemitil (prochlorperazine) though she doesn't take them continuously for prolonged periods - she lives in fear of them losing their effectiveness - my mum has MS.
Hope you get some answers soon The way you get messed around for a diagnosis is awful.
Hope you get some answers soon
The way you get messed around for a diagnosis is awful.Hey, Yeh i have being taking them for a few days and i read that it can take 1-2 days but it doesn't have a effect what so ever. I being taking Prochloperazine for a few months now and it doesn't have no effect which sucks because it was working so well.
Sorry to hear about your mum, hope all goes well.
Thats so true. I went for my second appointment at the specialist and they did a 2 minute test and that was it. I have to wait another 2-5 week for another pointless appointment which will probably be the same.
Try and up your dosage of Prochlorperazine? + what's your diet and water intake?
Original post by Lewis0015
Hey, Yeh i have being taking them for a few days and i read that it can take 1-2 days but it doesn't have a effect what so ever. I being taking Prochloperazine for a few months now and it doesn't have no effect which sucks because it was working so well.
Sorry to hear about your mum, hope all goes well.
Thats so true. I went for my second appointment at the specialist and they did a 2 minute test and that was it. I have to wait another 2-5 week for another pointless appointment which will probably be the same.
Sorry to hear about your mum, hope all goes well.
Thats so true. I went for my second appointment at the specialist and they did a 2 minute test and that was it. I have to wait another 2-5 week for another pointless appointment which will probably be the same.
Thanks. Mum tries to just get on with it.
What specialist did they send you to?
When my mum was first ill a few years ago now the GP just kept saying "oh are you depressed?" but eventually (after her right leg went numb!) they referred her to hospital - just a general medic there not a particular specialist - mum says best doc she ever saw - took her seriously sent for MRI scans and various other tests - results came back then she got to see a specialist (neurology) but as she had no eyesight problems they were dismissive too - but sent her for more tests and then low and behold oh yes all tests positive it is MS!
Keep fighting the system - hope you get answers soon.
Original post by AmyPilot
Thanks. Mum tries to just get on with it.
What specialist did they send you to?
When my mum was first ill a few years ago now the GP just kept saying "oh are you depressed?" but eventually (after her right leg went numb!) they referred her to hospital - just a general medic there not a particular specialist - mum says best doc she ever saw - took her seriously sent for MRI scans and various other tests - results came back then she got to see a specialist (neurology) but as she had no eyesight problems they were dismissive too - but sent her for more tests and then low and behold oh yes all tests positive it is MS!
Keep fighting the system - hope you get answers soon.
What specialist did they send you to?
When my mum was first ill a few years ago now the GP just kept saying "oh are you depressed?" but eventually (after her right leg went numb!) they referred her to hospital - just a general medic there not a particular specialist - mum says best doc she ever saw - took her seriously sent for MRI scans and various other tests - results came back then she got to see a specialist (neurology) but as she had no eyesight problems they were dismissive too - but sent her for more tests and then low and behold oh yes all tests positive it is MS!
Keep fighting the system - hope you get answers soon.
They sent me to a 'Ear, Nose and Throat (ENT)' Specialist. They made me do a test where i closed my eyes and marched on the spot, I ended up nearly walking into a wall within a minute. They gave me some exercises to do which was fine at first but then in this past week or two the dizziness got worse and my tablets had no effect on me so i couldn't keep doing them
Original post by Lewis0015
They sent me to a 'Ear, Nose and Throat (ENT)' Specialist. They made me do a test where i closed my eyes and marched on the spot, I ended up nearly walking into a wall within a minute. They gave me some exercises to do which was fine at first but then in this past week or two the dizziness got worse and my tablets had no effect on me so i couldn't keep doing them
Really hope you get it sorted soon.
My mum saw a neuro physiotherapist for other issues and talked to her about the vertigo and she told my mum that sometimes these type of exercises have to make you worse before they make you better (if that makes sense???).
Hope this is the case for you and you see some improvement soon.
Take care
Original post by Lewis0015
x
I was the same, and a load of other ear problems too. Possibly they could have done some permanent damage but your ENT specialist obviously has a far better idea of that than me! Is it possible you could have an ear infection now and that's suddenly made it worse in the last week or so? I had the same with prochlorperazine and betahistine, that doesn't help a lot though sorry. You really need to be asking your ENT person that and they need to work out what's causing it first, fortunately for me mine (well the really bad type) went away after a few months and rarely returns for more than a few days at a time in a really bad patch, hopefully yours might be the same. I know how debilitating it can be though, I hope they sort something out for you soon.
Original post by WoodyMKC
x
Sorry, missed this!
Wish I could do that, driving wipes me out completely! I can just about do twenty minutes then a break then another twenty or so, if that's the only thing I do in a day, my test almost killed me and it took me a year and a half to get that far. That's in a manual car though, wondering if I'd be better in automatic now you've said that as a lot of what I struggle with it coordination and multitasking anyway. Thanks!
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Original post by Lucy5446
Is there any chance it could be anxiety?
I don't think so, I have had anxiety for the past 3 years, even tho i had lots of friends and was classed as 'popular' and did go out. You get lazy and stay in a lot.
I don't think it could be because i did have Labrynthitis so i was told that it could have being damage from that.
Original post by furryface12
I was the same, and a load of other ear problems too. Possibly they could have done some permanent damage but your ENT specialist obviously has a far better idea of that than me! Is it possible you could have an ear infection now and that's suddenly made it worse in the last week or so? I had the same with prochlorperazine and betahistine, that doesn't help a lot though sorry. You really need to be asking your ENT person that and they need to work out what's causing it first, fortunately for me mine (well the really bad type) went away after a few months and rarely returns for more than a few days at a time in a really bad patch, hopefully yours might be the same. I know how debilitating it can be though, I hope they sort something out for you soon.
Sorry, missed this!
Wish I could do that, driving wipes me out completely! I can just about do twenty minutes then a break then another twenty or so, if that's the only thing I do in a day, my test almost killed me and it took me a year and a half to get that far. That's in a manual car though, wondering if I'd be better in automatic now you've said that as a lot of what I struggle with it coordination and multitasking anyway. Thanks!
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Sorry, missed this!
Wish I could do that, driving wipes me out completely! I can just about do twenty minutes then a break then another twenty or so, if that's the only thing I do in a day, my test almost killed me and it took me a year and a half to get that far. That's in a manual car though, wondering if I'd be better in automatic now you've said that as a lot of what I struggle with it coordination and multitasking anyway. Thanks!
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For the past few months i have only being taking one tablet per day and it has being kept at a low and it has being eased off but this past week my tablets have not touched it but i think the doctor giving me betahistine is the completely wrong tablet. My specialist said it was the brain which forgets signals and motion and Betahistine are for blood flow to the ears. Which my auntie told me who is a doctor. So i am going to ring the doctors up again and see if they can prescribe me anything different that is used for what i have?
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