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Do you have autism or aspergers?
I'd like to know what it is like to live with the condition.
What things do you find most problematic?
Are there benefits in your opinion?
How much does it effect your ability to socialise?
How do you think people percieve you when they know you have it?
Are you happy?
What things do you find most problematic?
Are there benefits in your opinion?
How much does it effect your ability to socialise?
How do you think people percieve you when they know you have it?
Are you happy?
Scroll to see replies
There are a few around. I'm not diagnosed (I was actually diagnosed with dyspraxia) but I do think I'm on the spectrum and will hopefully get referred to a specialist for a more detailed asssessment soon enough. But, as I'm not offifically diagnosed, feel free to ignore.
I find making friends slightly difficult, I'm quite shy which doesn't help. I'm not good at small talk, I can get by, but I feel so contrived and makes me feel uncomfortable. I'm not too bad in small groups, but hate large groups. That's another thing, I struggle with crowds and noise.
Not sure about benefits. I think it may be why (as a friend/person) I'm quite honest, plain speaking and loyal. Maybe that's my northerness
I think I covered the ability to socialise above. I can't really expand on that.
Well, I haven't been diagnosed and, apart from online, I haven't told anyone that I have dyspraxia/suspected Asperger's. Even my parents don't really know anything, despite my brother's dyspraxia, I don't really feel comfortable talking to them much anymore (I'm 24). To be honest, not really sure if I ever have.
I haven't really been happy these past few years. But that's due to a number of things and it's quite complex. I don't think I'm unhappy due to the Asperger's alone. But I've still never really been able to build up my self-confidence.
I find making friends slightly difficult, I'm quite shy which doesn't help. I'm not good at small talk, I can get by, but I feel so contrived and makes me feel uncomfortable. I'm not too bad in small groups, but hate large groups. That's another thing, I struggle with crowds and noise.
Not sure about benefits. I think it may be why (as a friend/person) I'm quite honest, plain speaking and loyal. Maybe that's my northerness
I think I covered the ability to socialise above. I can't really expand on that.
Well, I haven't been diagnosed and, apart from online, I haven't told anyone that I have dyspraxia/suspected Asperger's. Even my parents don't really know anything, despite my brother's dyspraxia, I don't really feel comfortable talking to them much anymore (I'm 24). To be honest, not really sure if I ever have.
I haven't really been happy these past few years. But that's due to a number of things and it's quite complex. I don't think I'm unhappy due to the Asperger's alone. But I've still never really been able to build up my self-confidence.
The most extreme form of Asperger's I've encountered is a guy who basically spent his entire school life being bullied because he was a social misfit and is now afraid of going out as he's a target for chavs, he has zero life goals, and doesn't seem to want to help himself. I'm glad I don't have that. And autism is usually much worse, although at one end you are unaware even there is anything wrong with you.
I'm dyslexic and that's easily enough for me.
I'm dyslexic and that's easily enough for me.
i'm like river... i'm not diagnosed, actually diagnosed with dyspraxia, and irlen syndrome. but it has been suggested. most often by family: my brother has HFA (high functioning autism), and obviously since my mum brought the pair of us up, she knows how my difficulties as a kid were the same as his. (buit i'm the oldest, hes the youngest. she hadnt heard of it back when i was a kid. it took till half way through the 3rd yr of my degree before i could persuade uni to assess me for dyspraxia, and to during my current postgrad course till i first heard of irlen syndrome).
then theres myself. i know enough about autism, both from my brother, from jobs i;ve had, and from living inside my weird head, to know that for sure i'm somewhere on the specturm. oh yeah. your questions:
What things do you find most problematic? not understanding other people. people problems are the main one. and taking things literally. people issues are the reason i am going to fail my teaching course this year.
Are there benefits in your opinion? erm, i dunno.i am typical in that i'm good at maths i guess? i'm also good at being able to explain maths in a slightly different way to others, so they understand it.
How much does it effect your ability to socialise? a lot.
How do you think people percieve you when they know you have it? they dont know i have it. not many people know about my dyspraxia. a few know about the irlen syndrome, from having seen me use an overlay
Are you happy? sometimes. i guess i am often fustrated. happiness isnt related to any autism though. more my current situation of being on an inapropriate course and not being able to quit.
then theres myself. i know enough about autism, both from my brother, from jobs i;ve had, and from living inside my weird head, to know that for sure i'm somewhere on the specturm. oh yeah. your questions:
What things do you find most problematic? not understanding other people. people problems are the main one. and taking things literally. people issues are the reason i am going to fail my teaching course this year.
Are there benefits in your opinion? erm, i dunno.i am typical in that i'm good at maths i guess? i'm also good at being able to explain maths in a slightly different way to others, so they understand it.
How much does it effect your ability to socialise? a lot.
How do you think people percieve you when they know you have it? they dont know i have it. not many people know about my dyspraxia. a few know about the irlen syndrome, from having seen me use an overlay
Are you happy? sometimes. i guess i am often fustrated. happiness isnt related to any autism though. more my current situation of being on an inapropriate course and not being able to quit.
I'd like to know what it is like to live with the condition.
What things do you find most problematic?
What things do you find most problematic?
It's horrible. I hate feeling like an alien, feeling completely different to everyone else. Everyone else has this magical ability to socialise and make great conversations and be humorous and make loads of friends and I don't and it feels horrible. It gets better as the years go by though.
Are there benefits in your opinion?
maybe not feeling empathy can be seen as beneficial? Or maybe the opposite.
How much does it effect your ability to socialise?
I can manage a conversation with one person (but most of the time, like River says, it feels very contrived), but talking in groups is really really difficult.
How do you think people percieve you when they know you have it?
I don't know.
Are you happy?
well yeah. I mean, about as happy as someone with no friends can be.
JMonkey
See a psychiatrist or clinical psychology professional via your GP, same way you would dyslexia.
IIRC there are internet tests like their are for depression too try Google. If you fit then go see a Dr.
IIRC there are internet tests like their are for depression too try Google. If you fit then go see a Dr.
Cheers.
I dunno though. I have done some of the tests and I do have a fair few symptoms of both aspergers and dyspraxia. But then again I am not sure if I would like to get diagnosed. Perhaps it is just nicer to think of myself as slightly eccentric and anti-social, just a different kind of personality.
crema
Cheers.
I dunno though. I have done some of the tests and I do have a fair few symptoms of both aspergers and dyspraxia. But then again I am not sure if I would like to get diagnosed. Perhaps it is just nicer to think of myself as slightly eccentric and anti-social, just a different kind of personality.
I dunno though. I have done some of the tests and I do have a fair few symptoms of both aspergers and dyspraxia. But then again I am not sure if I would like to get diagnosed. Perhaps it is just nicer to think of myself as slightly eccentric and anti-social, just a different kind of personality.
If it doesn't affect you adversely I wouldn't bother. It's like me an dyslexia, I never ask for more exam time or anything like that, because it doesn't effect me that way at all.
Just a quick note first; I'm currently self-diagnosed like most of the others above, however my official assessment is on May 29th -- the previous time I went for an assessment I was 12, and at the time I was not comfortable at all with the idea of being autistic. As such, that assessment process pretty much went nowhere. Currently I have a semi-official diagnosis of Dyspraxia from my GP which I received when I was 10; however both myself and my family feel that is more likely to be Aspergers Syndrome.
What things do you find most problematic?
I'm not going to list everything or this could turn into a mini-essay, so I'm going to limit myself to what I think are probably the two worst things.
1) Sensory sensitivity -- I can't stand being touched at all, by anyone, ever. It's hard to explain to people why; it isn't painful persay, more like a sudden shock and if it is a continuous touch then it is like being in that state for that amount of time. The only time I've ever truly lashed out (violently) at a stranger was when somebody was repeatedly touching me and I literally just flipped.
2) Coordination -- a bit stereotypical really; can't throw or catch a ball for my life, not at all good balance (which has earnt me some rather horrible nicknames in the past due to the way I walk and run because of this), and my handwriting is atrocious and comparable to that of a 10 year old (thankfully, this will be less of an issue at University than it is now as I already have sorted out exams etc. with them
).
Are there benefits in your opinion?
As an avid anti-cure activist I can't, and wouldn't even consider saying no -- as many bad points as there may be for me in being autistic there are so many advantages also. For example, the ability to concentrate completely on a subject -- many neurotypical people struggle to do learn so far into their field as they have more difficulty with having little variety in what they do (massive generalisation, but it is true for most of the population). For me this is far easier, and my 'special interest' (obsession) has been the same for over 6 years and I still spend all of my time doing it.
There are other things that I see as benefits also, but this is probably one of the biggest.
How much does it effect your ability to socialise?
Totally, completely, and utterly. I have a lot of difficulty making eye contact with people; and social cues in conversations among more than two people completely bewilder me. For example knowing when to speak; for me it always goes one of two ways:
1) I butt into the conversation at the wrong time, annoying people.
2) I don't talk at all and just sit and listen, which is probably what gives others the impression of me being an introvert.
How do you think people perceive you when they know you have it?
I'm sure that it makes people see me differently; certainly the few people who do know about it have changed the way they act around me slightly -- but this has only been a good thing as it makes being around other people a lot easier to deal with!
Are you happy?
Yes.
------------------
And, yeh, this ended up longer than I had hoped. Oh well.
What things do you find most problematic?
I'm not going to list everything or this could turn into a mini-essay, so I'm going to limit myself to what I think are probably the two worst things.
1) Sensory sensitivity -- I can't stand being touched at all, by anyone, ever. It's hard to explain to people why; it isn't painful persay, more like a sudden shock and if it is a continuous touch then it is like being in that state for that amount of time. The only time I've ever truly lashed out (violently) at a stranger was when somebody was repeatedly touching me and I literally just flipped.
2) Coordination -- a bit stereotypical really; can't throw or catch a ball for my life, not at all good balance (which has earnt me some rather horrible nicknames in the past due to the way I walk and run because of this), and my handwriting is atrocious and comparable to that of a 10 year old (thankfully, this will be less of an issue at University than it is now as I already have sorted out exams etc. with them
).Are there benefits in your opinion?
As an avid anti-cure activist I can't, and wouldn't even consider saying no -- as many bad points as there may be for me in being autistic there are so many advantages also. For example, the ability to concentrate completely on a subject -- many neurotypical people struggle to do learn so far into their field as they have more difficulty with having little variety in what they do (massive generalisation, but it is true for most of the population). For me this is far easier, and my 'special interest' (obsession) has been the same for over 6 years and I still spend all of my time doing it.
There are other things that I see as benefits also, but this is probably one of the biggest.
How much does it effect your ability to socialise?
Totally, completely, and utterly. I have a lot of difficulty making eye contact with people; and social cues in conversations among more than two people completely bewilder me. For example knowing when to speak; for me it always goes one of two ways:
1) I butt into the conversation at the wrong time, annoying people.
2) I don't talk at all and just sit and listen, which is probably what gives others the impression of me being an introvert.
How do you think people perceive you when they know you have it?
I'm sure that it makes people see me differently; certainly the few people who do know about it have changed the way they act around me slightly -- but this has only been a good thing as it makes being around other people a lot easier to deal with!
Are you happy?
Yes.
------------------
And, yeh, this ended up longer than I had hoped. Oh well.
I don't wish to over-step the mark or say things to offend anybody here, but I do have a couple of things I would like to add (which can construe people in a more positive light).
One way of approaching the topic is to grasp is that autism is best understood not as a disease which can be identified in the brain that leads to a set of universal traits ( behavioural and cognitive deviations). Autism is a complex, multi-level, embodied state of being. To see autism in a negative light is to see the entire person in a negative light since personhood and autism are inseparable. I say partly, because no conscious organism is shaped entirely by their biological constituency. This is too deterministic and reductionist -bodies contribute to the shaping of personhood, but so do the social, historical, cultural and material contexts that the bodies are situated within. All this has an impact on conscious awareness (of self, other, etc) and shapes the lived experiences of people with (and without) autism.
Bah, I'm waffling. I don't know how to say this in one simple sentence, because linguistically I feel forced to say "people with autism", but autism is not a "with", it is not some separate entity that bolts on somewhere or somehow to a person (who "has" autism). Because of this, a "cure" for autism has incredibly dubious ethical undertones, because in some ways it suggests that the entire person is a problem and seen in a negative light. The people I know with autism (on TSR, in real life etc), are wonderful people, and "curing" them would transform the very essence of who they are (which isn't a problem in the first place).
One way of approaching the topic is to grasp is that autism is best understood not as a disease which can be identified in the brain that leads to a set of universal traits ( behavioural and cognitive deviations). Autism is a complex, multi-level, embodied state of being. To see autism in a negative light is to see the entire person in a negative light since personhood and autism are inseparable. I say partly, because no conscious organism is shaped entirely by their biological constituency. This is too deterministic and reductionist -bodies contribute to the shaping of personhood, but so do the social, historical, cultural and material contexts that the bodies are situated within. All this has an impact on conscious awareness (of self, other, etc) and shapes the lived experiences of people with (and without) autism.
Bah, I'm waffling. I don't know how to say this in one simple sentence, because linguistically I feel forced to say "people with autism", but autism is not a "with", it is not some separate entity that bolts on somewhere or somehow to a person (who "has" autism). Because of this, a "cure" for autism has incredibly dubious ethical undertones, because in some ways it suggests that the entire person is a problem and seen in a negative light. The people I know with autism (on TSR, in real life etc), are wonderful people, and "curing" them would transform the very essence of who they are (which isn't a problem in the first place).
The Boosh: I tried to put that across in my second section also. Autism forms a part of who I am; most of the things that I enjoy and that I obsess over I wouldn't be as good at if I wasn't autistic. I wouldn't be as organised as I am, and to be honest a lot of my life would have taken a completely different direction. The idea of a cure really creeps me out; it reeks of eugenics -- especially the idea being thrown around of pre-natal testing. But that's a different discussion entirely...
TempusV
The Boosh: I tried to put that across in my second section also. Autism forms a part of who I am; most of the things that I enjoy and that I obsess over I wouldn't be as good at if I wasn't autistic. I wouldn't be as organised as I am, and to be honest a lot of my life would have taken a completely different direction. The idea of a cure really creeps me out; it reeks of eugenics -- especially the idea being thrown around of pre-natal testing. But that's a different discussion entirely...
That's really interesting and refreshing to hear
I wrote that post about 3am after a few whiskey's and missed some of what you said, but having reread it I see where you are coming from.This is an interesting video for the OP (a formal dialogue and discussion occurs just after the 3 minute mark):
http://www.youtube.com/watch?v=JnylM1hI2jc
The Boosh
That's really interesting and refreshing to hear I wrote that post about 3am after a few whiskey's and missed some of what you said, but having reread it I see where you are coming from.
This is an interesting video for the OP (a formal dialogue and discussion occurs just after the 3 minute mark):
http://www.youtube.com/watch?v=JnylM1hI2jc
I wrote that post about 3am after a few whiskey's and missed some of what you said, but having reread it I see where you are coming from.This is an interesting video for the OP (a formal dialogue and discussion occurs just after the 3 minute mark):
http://www.youtube.com/watch?v=JnylM1hI2jc
Thanks everyone for your replies.
I've seen that video before The Boosh and i have to say it is very, very interesting.
edanon
I'd like to know what it is like to live with the condition.
What things do you find most problematic?
Are there benefits in your opinion?
How much does it effect your ability to socialise?
How do you think people percieve you when they know you have it?
Are you happy?
What things do you find most problematic?
Are there benefits in your opinion?
How much does it effect your ability to socialise?
How do you think people percieve you when they know you have it?
Are you happy?
I'm on the autistic spectrum with Semantic Pragmatic Disorder.
What things do you find most problematic?
My condition crippled a lot for me when i was younger, suffice to say things are a hundred times better, but i still have mental blocks and get quite confused sometimes. Usually ''the things people take for granted'' are the issues in my life. I would seem perfectly normal though if you met me face to face. Semantic Pragmatic Disorder is never easy to diagnose.
Are there benefits in your opinion?
I'm sure it had something to do with fascination of science. In fact SPD children and adults tend to focus on subjects with strength.
How much does it effect your ability to socialise?
I wouldn't say it does.
How do you think people percieve you when they know you have it?
Never thought about it.
Are you happy?
Yes.
I got diagnosed with asperger's syndrome a month ago and I'm a ninteen-year-old girl.
What things do you find most problematic?
Generally, my life is fine. I have more friends than most people I know ("normal" people); I've had boyfriends, and I find it really easy to socialise in basically any situation. The thing is, my condition is mostly hidden. I appear to be more confident and socially adept than a lot of people, especially those on the autistic spectrum, but deep down inside I'm probably happiest sitting in my room and reading a book, or learning about computers. I do enjoy hanging out with people, but the more naive activities - like researching a topic of interest for hours - still give me more of an extended happiness than sleeping with a stranger or going clubbing etc. So, I question my life a lot, and I feel an immense amount of guilt if I feel I'm neglecting intellectual/innocent pursuits for the sake of fitting in and, essentially, focusing on people rather than things. Feeling permanently torn is the most problematic thing. I almost have a dual personality.
Are there benefits in your opinion?
Yes, a lot. I can look at any situation objectively and I have immense control over my emotions. I'm very logical and great at solving problems, so my friends appreciate me for that, and I get asked for advice a lot, which helps build up relationships. Also, I have a high IQ and I can learn basically anything quickly.
How much does it affect your ability to socialise?
I sort of answered this in part one, and the answer is "not at all, really". I am not that typical of someone with AS, but as it's a spectrum disorder there is no one stereotype. I have only met one other person with asperger's who leads a similar life to me (going out a lot, doing stuff "normal people" do) - the others all seem to prefer focusing on their special interests and making friends in those areas. The thing is, I try to do everything, and be all kinds of people at once as my personality is so diverse, and it makes my life pretty complicated.
How do you think people perceive you when they know you have it?
Generally people say "there is no way you have that". None of my friends would ever have guessed. I am essentially autistic in private; no one knows what goes on underneath. I just meltdown in isolation.
Are you happy?
Sometimes.
What things do you find most problematic?
Generally, my life is fine. I have more friends than most people I know ("normal" people); I've had boyfriends, and I find it really easy to socialise in basically any situation. The thing is, my condition is mostly hidden. I appear to be more confident and socially adept than a lot of people, especially those on the autistic spectrum, but deep down inside I'm probably happiest sitting in my room and reading a book, or learning about computers. I do enjoy hanging out with people, but the more naive activities - like researching a topic of interest for hours - still give me more of an extended happiness than sleeping with a stranger or going clubbing etc. So, I question my life a lot, and I feel an immense amount of guilt if I feel I'm neglecting intellectual/innocent pursuits for the sake of fitting in and, essentially, focusing on people rather than things. Feeling permanently torn is the most problematic thing. I almost have a dual personality.
Are there benefits in your opinion?
Yes, a lot. I can look at any situation objectively and I have immense control over my emotions. I'm very logical and great at solving problems, so my friends appreciate me for that, and I get asked for advice a lot, which helps build up relationships. Also, I have a high IQ and I can learn basically anything quickly.
How much does it affect your ability to socialise?
I sort of answered this in part one, and the answer is "not at all, really". I am not that typical of someone with AS, but as it's a spectrum disorder there is no one stereotype. I have only met one other person with asperger's who leads a similar life to me (going out a lot, doing stuff "normal people" do) - the others all seem to prefer focusing on their special interests and making friends in those areas. The thing is, I try to do everything, and be all kinds of people at once as my personality is so diverse, and it makes my life pretty complicated.
How do you think people perceive you when they know you have it?
Generally people say "there is no way you have that". None of my friends would ever have guessed. I am essentially autistic in private; no one knows what goes on underneath. I just meltdown in isolation.
Are you happy?
Sometimes.
Titch89: Respectfully, I disagree. I was self-diagnosed (okay, not just self as my family thought so too, not that it is relevant) for over 6 years before getting my diagnosis (I received my diagnosis on the 29th of May, and literally just got my diagnostic report through today).
Self-diagnosis is fine in my opinion, even a good thing. Having something that explains why you are so different and don't fit in is very reassuring -- I can say with certainty that when I was 13 years old it was a relief to know that what I was like was normal, at least in some way.
Admittedly some people take self-diagnosis too far, and lie to themselves in order to get the answers that they want to get. Provided that you don't lie to yourself, it's something that I personally don't think should be discouraged.
Self-diagnosis is fine in my opinion, even a good thing. Having something that explains why you are so different and don't fit in is very reassuring -- I can say with certainty that when I was 13 years old it was a relief to know that what I was like was normal, at least in some way.
Admittedly some people take self-diagnosis too far, and lie to themselves in order to get the answers that they want to get. Provided that you don't lie to yourself, it's something that I personally don't think should be discouraged.
I have dyspraxia and dyslexia although mild and am fighting(not hard but I have no fight)to be assessed for aspergers(Again mild have been told by different professionals) and possible ADHD, I am 25
I have always suffered from depression and massive naivity and have been badly bullied however in my case I could have been almost "normal" as up until I went into high school I was popular(not perfect as was from council estate though) and hyper and had many girls fancying me, then I started high school and entered a social class system and was bullied badly so my only way of surviving was to shut up and let the world verbally and physcially beat me up. Back when I was 8 and when I was 12 because I was different(was always getting into trouble at school before as I say going the opposite way when I was at high school) and both times I was incredibly advanced at 12 I had the english, maths and other skills of a 16-18 year old and was told I should be advanced a year at school, sods law though that my psychologist had a nervous breakdown after his daughter was knocked down and killed and my school thought everyone from a council estate were thick chavs and gave no help.
Back to my disabilities I was essentially thick social wise I had no friends as such but people I talked to at college who I may walk to the bus stop but even now almost 10 years on dont go round to friends houses as people even now call me weird, the other day in fact when I went for a drink around 10pm some metrosexual guys looked at me and laughed and shouted "virgin" I am NOT a virgin but admit to have only having 1 girlfriend in life(technically 2 but didnt sleep with her) and about 10 sexual one night stands.
I cannot tell if someones being nice genuinely or winding me up, some smack heads broke into my flat and stole everything because I was polite to them and a nice guy, have had girls(back when I was thin and not spotty) come up to me in a club and rub themselves against me or just flirt but cannot tell if they fancy me or just winding me up as sometimes I have blushed and she laughs and all her friends laugh and say stuff like "why would we get with a person like you, ewwww"
Problem is, its like a brick wall my few friends I have often "dump" me as I am a "woe is me" person often but let me listen to all their problems but when I really do have them they tell me to shut up and that I only care about myself probably as when im friends with someone I talk for hours about my life growing up and how I wish I was normal.
Anyway blah blah blah if people are interested I can go on for pages.
I have always suffered from depression and massive naivity and have been badly bullied however in my case I could have been almost "normal" as up until I went into high school I was popular(not perfect as was from council estate though) and hyper and had many girls fancying me, then I started high school and entered a social class system and was bullied badly so my only way of surviving was to shut up and let the world verbally and physcially beat me up. Back when I was 8 and when I was 12 because I was different(was always getting into trouble at school before as I say going the opposite way when I was at high school) and both times I was incredibly advanced at 12 I had the english, maths and other skills of a 16-18 year old and was told I should be advanced a year at school, sods law though that my psychologist had a nervous breakdown after his daughter was knocked down and killed and my school thought everyone from a council estate were thick chavs and gave no help.
Back to my disabilities I was essentially thick social wise I had no friends as such but people I talked to at college who I may walk to the bus stop but even now almost 10 years on dont go round to friends houses as people even now call me weird, the other day in fact when I went for a drink around 10pm some metrosexual guys looked at me and laughed and shouted "virgin" I am NOT a virgin but admit to have only having 1 girlfriend in life(technically 2 but didnt sleep with her) and about 10 sexual one night stands.
I cannot tell if someones being nice genuinely or winding me up, some smack heads broke into my flat and stole everything because I was polite to them and a nice guy, have had girls(back when I was thin and not spotty) come up to me in a club and rub themselves against me or just flirt but cannot tell if they fancy me or just winding me up as sometimes I have blushed and she laughs and all her friends laugh and say stuff like "why would we get with a person like you, ewwww"
Problem is, its like a brick wall my few friends I have often "dump" me as I am a "woe is me" person often but let me listen to all their problems but when I really do have them they tell me to shut up and that I only care about myself probably as when im friends with someone I talk for hours about my life growing up and how I wish I was normal.
Anyway blah blah blah if people are interested I can go on for pages.
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Max amount of DSa taxi's per yr/sorting out mileage for different postcodes?
