hey guys, I'm not sure how active this thread is.
I had Glandular Fever at the end of August 2015, and was diagnosed with Post Viral Fatigue and told it would go away within a year and if it was still bad after a year only then would doctors be concerned. It ruined my A2 year and I'm now redoing it at college which I hate, has longer hours and tires me out ridiculously. I've been there for 3/4 weeks, already had 1 week off due to fatigue and can't manage a full week as monday and tuesday I'm in 9-5 and my only break is 1 hour for lunch. Similarly, wednesday is 11-5 with an hour for lunch, thursday 9-5 with a gap between 11 and 2 and friday I'm in 9-11.
I've had bloods done so many times, and nothing is wrong and they're all perfect. Changed doctors, and a year on all that's happened is bloods have been done and I've been told now side effects of my ADD meds has to be ruled out.
I get so tired I sometimes don't know where I am, my legs some days feel like they're lead and I struggle to get out of bed. I get incredibly bad migraines that can last for 2-3 days, joint pain and lower back pain I never used to get, tasks that used to be easy seem to take ages now. When I'm good, I just feel like I tire quicker, or I'm running on about 5 hours sleep even if I've had 8-9 hours. When I'm bad, it's like I get no energy or rest from sleep at all, and when it's really bad, I get a migraine so bad painkillers don't work, and it actually is so painful it stops me sleeping. I've always been migraine prone, but now they're much worse. I also before had a sensitive stomach/possible IBS which now is 10x worse to the point I can't even eat cheese and onion crisps and seem to be lactose intolerant. I'm always too warm or too cold, and even when I'm too warm, my feet and often my fingers, are freezing and my feet turn blue. My feet can be so cold even thick socks and sitting with them under a duvet won't help.
I am mentally 100%, apart from brain fog, forgetting basic terms/words, forgetting sentences and feeling like I'm unable to understand words/spell things/remember words for things even if I know what they are. It's more common when I'm really tired, or inbetween, and it's the inbetween days that are a problem at school. My ADD meds don't seem to make this worse or better, but drs won't do any further tests until med side effects are ruled out, and my consultant psychiatrist is awful and doesn't believe in adult ADD so my fear is he will just take me off my ADD meds which is one of the worst things that could happen as my concentration and focus, as well as energy levels, seems to fall without them.