The Revamped TSR Asperger's Society!
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Original post by Frostyjoe
Ugh honestly so fed up with the professionals that do work for me. They are supposed to be clued in and know about my condition but they really do not
Constantly they talk nonsense about the condition and treat me as if I am some sort of thick idiot, also why do they think that everyone with the condition acts the same way?
Constantly they talk nonsense about the condition and treat me as if I am some sort of thick idiot, also why do they think that everyone with the condition acts the same way?
Sounds familiar. I had to point out to some so-called "expert" that Autism is a spectrum and that I'm female, after I was told that I can't possibly have Autism because "I think my father has it and you're nothing like him". I just have anxiety, apparently.
They always try and make me feel upbeat at the start of the year and set up of a schedule of all the stuff they are gonna do but instead it ends up taking about six weeks for them to do something simple. Complete waste of time to be honest.
Ugh I don't know sometimes. I just get on with it the most of the time but getting a bit fed up of people misunderstanding my condition and treating me weird. I've just decided to only tell the people who need to know from now on.
Ugh I don't know sometimes. I just get on with it the most of the time but getting a bit fed up of people misunderstanding my condition and treating me weird. I've just decided to only tell the people who need to know from now on.
(edited 9 years ago)
I cannot locate a ranting area so I will rant here.
Grandfather for mums side is in a hospital. Everyone is cranky and taking it out on me, my father constantly nags me and then tells me to shut up. The reactions he has are totally over the top, its almost as if he can't stand me. Its all about him, you have to do what he wants and goodness help you if you use the tv when bbc news is on.
Mum is being nasty too and making me feel bad. I am sick of this and can't wait to get away from them treating me like this. I don't know why my father thinks because there is a family illness that it is alright to treat me like crap.
Father will nag me when I get up and start roaring if I don't do what he wants. E'g he will get me up and tell me to do dishwasher which is fine but then when I do the dishwasher everything has to be in a certain way and perfect. He calls me all the names under the sun making me feel like a complete failure. I go out driving and he runs me down and acts as if my driving is a complete failure when all I did was rev highish by accident, its not as if I flipping crashed
I Want to rant on facebook but my relatives will bitch to him about me.
Grandfather for mums side is in a hospital. Everyone is cranky and taking it out on me, my father constantly nags me and then tells me to shut up. The reactions he has are totally over the top, its almost as if he can't stand me. Its all about him, you have to do what he wants and goodness help you if you use the tv when bbc news is on.
Mum is being nasty too and making me feel bad. I am sick of this and can't wait to get away from them treating me like this. I don't know why my father thinks because there is a family illness that it is alright to treat me like crap.
Father will nag me when I get up and start roaring if I don't do what he wants. E'g he will get me up and tell me to do dishwasher which is fine but then when I do the dishwasher everything has to be in a certain way and perfect. He calls me all the names under the sun making me feel like a complete failure. I go out driving and he runs me down and acts as if my driving is a complete failure when all I did was rev highish by accident, its not as if I flipping crashed
I Want to rant on facebook but my relatives will bitch to him about me.
(edited 9 years ago)
How are we all? 
I'm still waiting for results of my assessment.
Making more effort socially. Going to the work team christmas meal this week. And supposed to be going to a christmas party next week. Can do the meal, really don't want to do the party though.
Making more effort socially. Going to the work team christmas meal this week. And supposed to be going to a christmas party next week. Can do the meal, really don't want to do the party though.
Original post by keromedic
How are we all?
Pretty good, thanks. I've made a life plan. How are you?
Posted from TSR Mobile
The christmas meal with work went well and i did some chatting there.
The psychologist has also spoken to my mum about my childhood. I will find out if i have a diagnosis next year.
The psychologist has also spoken to my mum about my childhood. I will find out if i have a diagnosis next year.
I really hope I canfight past this condition. I am a bright and capable person so it annoys me that this is keeping me back.
Sometimes I just want to cry and cry for hours.
Sometimes I just want to cry and cry for hours.
(edited 9 years ago)
Original post by Frostyjoe
I really hope I canfight past this condition. I am a bright and capable person so it annoys me that this is keeping me back.
Sometimes I just want to cry and cry for hours.
Sometimes I just want to cry and cry for hours.
Can I make a suggestion? I've found that fighting it doesn't work, you need to embrace it. Accept that it is part of you but say that that is not all you are. If you fight not only will it make your life a living hell. But also it gives others permission to treat you like a freak.
Still waiting to find out if i have aspergers or not. Feels like it's taking forever...
Original post by thisisme!
Still waiting to find out if i have aspergers or not. Feels like it's taking forever...
Why is yours taking so long? Mine was rather straight forward - I only had 2 appointments, which lasted for a total of about 1.5 hours. Although, my case was pretty clear. But apparently, it has been obvious for years. My parents said they didn't bother getting me diagnosed as a child because they knew that they would just be labeled (it's happened before) as liars.
Original post by OU Student
Why is yours taking so long? Mine was rather straight forward - I only had 2 appointments, which lasted for a total of about 1.5 hours. Although, my case was pretty clear. But apparently, it has been obvious for years. My parents said they didn't bother getting me diagnosed as a child because they knew that they would just be labeled (it's happened before) as liars.
I don't know... maybe it takes a long time to gather all the test results and interview information etc together and write the report?
I don't know if this is the right place to post but I just wondered if anyone here has actually self-diagnosed Aspergers and been happy to leave it at that?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
Original post by BigV
I don't know if this is the right place to post but I just wondered if anyone here has actually self-diagnosed Aspergers and been happy to leave it at that?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
I've met many people who have self diagnosed and quite frankly, it's an insult to those of us who do have a proper diagnosis. Mostly because their reasons for their diagnosis are absolutely riduclous. One claimed he's Autistic because he's "good at maths".
I have heard that a private diagnosis isn't always accepted. Well, some people says they are and some say they aren't.
Original post by BigV
I don't know if this is the right place to post but I just wondered if anyone here has actually self-diagnosed Aspergers and been happy to leave it at that?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
I've had issues all my life with depression, social anxiety/difficulty and so on. I recently saw a doctor who suggested maybe I'm on the "autistic spectrum" and after reading up it makes sense. I did some online tests and scored really high on the both the "AQ Test" and the "aspie quiz", then I scored really low on empathy quotient as well. I also feel I was dyspraxic as a child and probably still have some traits now.
Now I don't know whether I should push for an official NHS diagnosis (all the stress and waiting that goes with it) or just accept my own 'self diagnosis'?
I also looked into getting a private psychologist assessment, but it is about £500 for the assessment and a written report and I don't know if this would be accepted by the GP/Uni/etc.
Since there is no cure I'm not sure how a diagnosis would help me; I'm entitled to extra support because of the "anxiety" diagnosis. So apart from explaining so many of my issues right back from childhood how does having the Asperger label help me?
I 'self-diagnosed' but followed it up by quickly going to my GP. I'd say go to your GP, voice your concerns and go from there. No offence, but a doctor's opinion is probably more valid, and online tests might not mean anything.
Original post by Edminzodo
I 'self-diagnosed' but followed it up by quickly going to my GP. I'd say go to your GP, voice your concerns and go from there. No offence, but a doctor's opinion is probably more valid, and online tests might not mean anything.
As I wrote in my original post, I already have a doctor's opinion, it is just a case of if I want to follow through and get referred and officially labelled.
It was a consultant who said in his opinion I may be on the spectrum, but as he isn't a specialist in adult diagnosis he couldn't say for sure. I was told to go away read up online and at my next appointment to discuss if I wanted to take it further.
Based on what he said, my history, reading and online tests I think I probably have asperger's. The question is, is his tentative opinion and my self-diagnosis enough, or should I ask to get properly diagnosed with all that entails?
All this to tell me something that now seems obvious and that cannot be changed anyway.
My head is spinning really, so much to take in.
(edited 9 years ago)
Original post by Edminzodo
I 'self-diagnosed' but followed it up by quickly going to my GP. I'd say go to your GP, voice your concerns and go from there. No offence, but a doctor's opinion is probably more valid, and online tests might not mean anything.
The problem with any online test is that they can't take into account other condiitons you have. For example, we had to do the screening test for Dyslexia at college. I know for a fact I don't have Dyslexia. My reading skills are poor due to being partially sighted and my memory is poor due to having a head injury. College were adamant this wasn't the case and sent me for the proper test. The educational psychologist did write in his report that given my situation, he would expect the results I have.
I know that when I saw the GP and the psychiatrist over my Autism diagnosis, they both said that I would be harder to test because of the other issues I have. I made a list of the symptoms I have and did have to explain that for a few of them, it's probably because of something else I have. For example, many of us with Autism have hypersensitivity issues, which is also common for those of us with sight impairment. (it's to do with compensating for loss of vision)
There is something about a huge overlap between Dyspraxia and Autism.
Original post by BigV
As I wrote in my original post, I already have a doctor's opinion, it is just a case of if I want to follow through and get referred and officially labelled.
It was a consultant who said in his opinion I may be on the spectrum, but as he isn't a specialist in adult diagnosis he couldn't say for sure. I was told to go away read up online and at my next appointment to discuss if I wanted to take it further.
Based on what he said, my history, reading and online tests I think I probably have asperger's. The question is, is his tentative opinion and my self-diagnosis enough, or should I ask to get properly diagnosed with all that entails?
All this to tell me something that now seems obvious and that cannot be changed anyway.
My head is spinning really, so much to take in.
It was a consultant who said in his opinion I may be on the spectrum, but as he isn't a specialist in adult diagnosis he couldn't say for sure. I was told to go away read up online and at my next appointment to discuss if I wanted to take it further.
Based on what he said, my history, reading and online tests I think I probably have asperger's. The question is, is his tentative opinion and my self-diagnosis enough, or should I ask to get properly diagnosed with all that entails?
All this to tell me something that now seems obvious and that cannot be changed anyway.
My head is spinning really, so much to take in.
I honestly think you should get properly diagnosed, but it's up to you. Getting diagnosed gave me peace of mind.
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Original post by 12AKersley
Hi. Been waiting 2 and a half years for an assessment. CAMHS won't do anything and it is driving me insane as I can't get any help until they move their butts.
It is practically obvious in my behaviour I have Asperger's and my deputy head is 99% sure I have it.
I have accompanying Dyspraxia, Disgraphia, Anxiety, Depression and slight OCD.
I find socializing difficult and heightened sense, especially touch and sound. I get bullied and get into fights as I find it hard to control my emotions and I get angry.
When I get angry though I s like something else has taken over me I am aware of some of the stuff that I happening around me but I am powerless to stop it and none of my teachers understand autism.
Once I had a test to see if I was intelligent an my IQ was above average. I find that if something interests me I can soak it up like a sponge.
I have few friends and feel alone. I often get food chucked at me like soup, cheese, water and yoghurt. I hate it and the people who do this to me don't get told off.
It is practically obvious in my behaviour I have Asperger's and my deputy head is 99% sure I have it.
I have accompanying Dyspraxia, Disgraphia, Anxiety, Depression and slight OCD.
I find socializing difficult and heightened sense, especially touch and sound. I get bullied and get into fights as I find it hard to control my emotions and I get angry.
When I get angry though I s like something else has taken over me I am aware of some of the stuff that I happening around me but I am powerless to stop it and none of my teachers understand autism.
Once I had a test to see if I was intelligent an my IQ was above average. I find that if something interests me I can soak it up like a sponge.
I have few friends and feel alone. I often get food chucked at me like soup, cheese, water and yoghurt. I hate it and the people who do this to me don't get told off.
I'm sorry it's taking so long for you to get a diagnosis. How are things now? Have CAMHS organised an assessment yet?
I was seeing a CAMHS councillor for about a year for my OCD. My usual councillor went on maternity leave and I saw another. After my first meeting with her she told me she wanted to speak to my parents who told me she thought I suffered from Aspergers. I went for an assessment which confirmed it.
The cynic in me feels CAHMS and other NHS services deliberately slow down the diagnosis to save money.
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