Life is unfair sometimes. When we are faced with things like this, we have to try to not make our ilness or sickness our whole life, but we should instead make the most of life and do the best we can with what we have. Claire Wineland was such an inspiration to me, (you can find her on youtube but do know she has passed now).
Yes you have a skin condition, yes things will change for you, you will adapt to a new normal. It is never an easy thing, but life is not always easy.
I am sure you do not want pity etc or well maybe you do. We all deal with things in our own way. Try not to make the focus of your life this skin condition, you stil have lots of other things going for you. Aspirations, dreams, goals to reach. Keep your focus on them and instead see how you can manage your condition so you can make the most of life.