Yes, well females can have an extra x chromosome too but thats something different. Not scared, I just want to know now but my appointment is in 10 days, its my first appointment with an endocrinologist at hospital I got referred by a gp. So i probably wont know for some time after that. Which is the worst thing for me the wait, rather than the result itself. So i can get on with the rest of my life without being inbetween if that makes sense. Its been a long 3 month referral wait. It will obviously affect me if I do, as there is no cure but it would explain alot of things.

Reply 5

Anonymous #1

OP

Original post by hukdealz

super-male

what are the symptoms?

Ha I wouldnt say supermale. Probably the total opposite to be honest...

Causes a lot of issues. Causes infertility for almost all cases. So no not super -male unfortunately.

symptoms can include. height above 6ft, little or no facial hair, belly fat, depression

Reply 6

Vorsah

5

Original post by Anonymous

Yes, well females can have an extra x chromosome too but thats something different. Not scared, I just want to know now but my appointment is in 10 days, its my first appointment with an endocrinologist at hospital I got referred by a gp. So i probably wont know for some time after that. Which is the worst thing for me the wait, rather than the result itself. So i can get on with the rest of my life without being inbetween if that makes sense. Its been a long 3 month referral wait. It will obviously affect me if I do, as there is no cure but it would explain alot of things.

Do you have a doubt that you are XXY?

Reply 7

Anonymous #1

OP

Original post by Vorsah

Do you have a doubt that you are XXY?

Well, I have alot of the symptoms... I dont know I am a tiny bit undecided. But I wouldnt be shocked if I my results came back positive for xxy

Reply 8

insert-username

14

you aren't "genetically male" as long as you have a y chromosome. you're genetically male if you have xy. if you have xxy then you are genetically intersex. any other combination other than xx or xy = intersex (neither genetically male or female). i'm an intersex male myself (somatic mosaicism xx/xy - means i have both xx and xy chromosomes) i look male, have male genitals and identify as a male, though i did have to have surgery due to excess breast tissue.
being intersex doesnt make you less of what you identify with. if you identify as female, then you're female. and vice versa. it doesn't determine who you are, you dont need to be nervous about getting tested. obviously theres downsides. i'm sterile due to my condition, but it doesnt otherwise affect my life. the hormonal problems causing lack of facial hair and other problems are easily correct with hormone therapy (testosterone injections) which will be prescribed by your doctor.

Reply 9

Anonymous #1

OP

Original post by insert-username

you aren't "genetically male" as long as you have a y chromosome. you're genetically male if you have xy. if you have xxy then you are genetically intersex. any other combination other than xx or xy = intersex (neither genetically male or female). i'm an intersex male myself (somatic mosaicism xx/xy - means i have both xx and xy chromosomes) i look male, have male genitals and identify as a male, though i did have to have surgery due to excess breast tissue.
being intersex doesnt make you less of what you identify with. if you identify as female, then you're female. and vice versa. it doesn't determine who you are, you dont need to be nervous about getting tested. obviously theres downsides. i'm sterile due to my condition, but it doesnt otherwise affect my life. the hormonal problems causing lack of facial hair and other problems are easily correct with hormone therapy (testosterone injections) which will be prescribed by your doctor.

Oh right okay, well Y is the sex-determiningchromosome in many species, since it is the presence or absence of Y that determines male or female sex. I got told I would not be intersex, I would still be genetically male, obviously I am I have male genitals. Although I am quite androgynous... Do you have any other symptoms? There are downsides, like 20 times more likely to get breast cancer, autoimmune diseases, diabetes, osteoporosis, the list goes on... I have been made aware of.
Do you have testosterone injections? thats what I worry about the most, as I am seeing a specialist for acne and the testosterone can cause acne. I had my testosterone levels tested and my gp said they arent low they are low normal which has confused me, as why would I need the extra testosterone if it is not that low?

Reply 10

insert-username

14

Original post by Anonymous

Oh right okay, well Y is the sex-determiningchromosome in many species, since it is the presence or absence of Y that determines male or female sex. I got told I would not be intersex, I would still be genetically male, obviously I am I have male genitals. Although I am quite androgynous... Do you have any other symptoms? There are downsides, like 20 times more likely to get breast cancer, autoimmune diseases, diabetes, osteoporosis, the list goes on... I have been made aware of.
Do you have testosterone injections? thats what I worry about the most, as I am seeing a specialist for acne and the testosterone can cause acne. I had my testosterone levels tested and my gp said they arent low they are low normal which has confused me, as why would I need the extra testosterone if it is not that low?

the testosterone may cause acne because it essentially puts you through fast track puberty. so you will be like any other teenage boy going through puberty, some guys never get acne and some do, all depends on your genetics. either way the acne is temporary, if you do develop it will go away eventually, plus acne is very easily treated with good skin care and face wash.

Yes i have regular hormone injections. i really dont see the big deal, its no different from anyone else having to have treatment. i have my injections every 3 months (12 weeks) i'm on Nebido and its a permanent treatment which means i'll be on it for the rest of my life because my body simply oesnt produce the right amount of testosterone i need on its own. but its no big deal, really what's 5 minutes a day 4 times a year to have an injection with a nurse? doesn't make any impact on my life other than keep me healthy and fine.
like i said, i developed excess breast tissue when i was younger due to my condition so i had surgery to remove it (essentially a masectomy) which leaves me with practically zero chance of having breast cancer since there's very little breast tissue left, my chest just looks like a regular guys chest now.

if your testosterone injections are within the normal range then you shouldnt really need to have injections. i only need injections because mine are naturally extremely low without injections and not having enough hormones produced can kill you because you need the right level of hormones for your bone marrow. so i cant survive without the injections. but like i said its not as severe as it sounds, its really not an issue.
i didnt have anyother symptoms other than developing excess breast tissue when i went through puberty. obviously it was a major issue which needed surgery to fix, but other than that i function normally. i'm pretty hairy loads of facial and body hair but thats just down to genetics. many non-intersex guys cant grow facial hair just because they dont have genetics for it, so lack of body hair isn't always a symptom of being intersex, its just genetics.

in my honest opinion, dont worry about it. getting diagnosed was one of the most positive things to ever happen to me - meant i could get the treatment i needed and live my life happily. you've really got nothing to be anxious or upset about.

Does anyone here have XXY?

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