Hi, I was wondering if anyone else had any advice/personal experience with eds. I have already been diagnosed with pots, mitral valve prolapse and mitral valve regurgitation by my cardiologist, which I am aware is common with eds. My mum has managed to get me an initial appointment with a geneticist, in January, after being originally referred in October. My symptoms are very severe at the moment, I have been hospitalised for a week due to fainting so frequently in November, and it still happens very regularly (once a day most days, though sometimes more or less). My pads consultant, who (supposedly) specialises in pots, has referred me to a national specialist who normally only sees over 16s as he "has never seen anyone deteriorate so quickly as me" and doesn't really know what to do anymore. I haven't been to school in over a month, and am pretty much wheelchair bound when not at home due to the frequency of my fainting/collapsing, fatigue etc. I am hoping the pots specialist will agree medication could be an option for me, or can think of another treatment option. I have also dislocated my shoulder a few times now, including yesterday, when my GP told me I have been walking round with a dislocated shoulder without realising, despite being in excoriating pain (well now I know why)! I am also very hyper mobile, have clicking joints and pain in my neck, knee, hip and shoulder. I also have gi issues, such as stomach pain, extreme nausea and constipation. Thank you for reading this.