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Hazelly
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#1


This blog was first made as I was due major surgery to correct a tracheo-oesophageal fistula (TOF) which was diagnosed a month before the first-ever COVID-19 lockdown in the UK. The condition is rare whereby only seventeen other adults have this type of TOF worldwide


The plan for this blog was to just keep track of my days before surgery and hopefully get to know some new people on TSR



About me:
I am a year 13 student studying Health and Social Care

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I have a colostomy and this was placed in June 2019, aaaaaand I've finally dealt with it which has massively changed things with giving me more independence

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I have currently applied for Child Nursing but I'm not 100% sure still whether this is my career route!
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Am also hoping to start swimming again as I haven't since getting a colostomy last year which I'm very excited about


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As a de-stress activity, I love to do paint by numbers with intricate canvases


My stressful long and boring medical background

I was born with a rare syndrome called VACTERL, it affects my spine, bowels, trachea, oesophagus, kidneys, and my bladder


On January the 6th I had a follow-up appointment with my surgeon who repaired my TOF fistula, they have booked me in for an endoscopy and bronchoscopy +/- a dilation if they find a stricture which means apart of the oesophagus is tightened

It's because for the last few months I've started to choke on foods and drinks as well as having food become a 'stickie' which isn't the nicest!


I am also waiting to see my new neurosurgeon because my peads neurologist is thinking that I might have tethered cord which means scar tissue tethers to the spinal column and is causing me a whole host of issues such as numbness in the legs, back pain, bladder issues, and I struggle to stand for more than five-ten minutes



I hope you enjoy this blog and thank you to anyone who stays around!


Last edited by Hazelly; 1 year ago
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DrawTheLine
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#2
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#2
Best of luck for the surgery! Sounds pretty complicated, so I hope it goes well. Could I be added to the tag list too?
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Hazelly
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#3
(Original post by DrawTheLine)
Best of luck for the surgery! Sounds pretty complicated, so I hope it goes well. Could I be added to the tag list too?
Best of luck for the surgery! Sounds pretty complicated, so I hope it goes well. Could I be added to the tag list too?

And of course, I’ll add you now

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The_Lonely_Goatherd
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#4
Posting to subscribe. Thinking of you and here to support if/as needed 
PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night

PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night

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absolutelysprout
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#5
Hazelly
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#6
(Original post by The_Lonely_Goatherd)
Posting to subscribe. Thinking of you and here to support if/as needed
PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night
Posting to subscribe. Thinking of you and here to support if/as needed

PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night



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FRS500
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Pathway
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username5332444
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#9
i hope it goes well!!
i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain
i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain
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danc1456
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#10
hope it all goes well. Nice to see that its going ahead and i bet your quite pleased about that.
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halsx11
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furryface12
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Anonymous778
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#13
Hazelly
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#14
(Original post by FRS500)
Keep safe OP!
Keep safe OP!
(Original post by Anonymous778)
Sounds interesting, good luck! Tag me for updates x
Sounds interesting, good luck! Tag me for updates x
will do

Last edited by Hazelly; 2 years ago
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Hazelly
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#15
(Original post by halsx11)
Hi hope the OP is successful 🙌 for now just try and relax as much as possible! I just read ur blog to me your a hero inside out! I can’t imagine how it’d feel like going through this! We’re all here for you! 🥰🥰 Hazelly
Hi hope the OP is successful 🙌 for now just try and relax as much as possible! I just read ur blog to me your a hero inside out! I can’t imagine how it’d feel like going through this! We’re all here for you! 🥰🥰 Hazelly

(Original post by danc1456)
hope it all goes well. Nice to see that its going ahead and i bet your quite pleased about that.
hope it all goes well. Nice to see that its going ahead and i bet your quite pleased about that.
(Original post by certirinc)
i hope it goes well!!
i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain
i hope it goes well!!
i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain


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Chronoscope
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#16
Good luck!
you've got this 
What genre of books would you say you're interested in?
(YA/fantasy/action/etc?)


What genre of books would you say you're interested in?

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Hazelly
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#17
(Original post by Chronoscope)
Good luck!
you've got this 
What genre of books would you say you're interested in?
(YA/fantasy/action/etc?)
Good luck!


What genre of books would you say you're interested in?


I quite like medical and action books

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Chronoscope
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#18
(Original post by Hazelly)
Thank you
I quite like medical and action books
Though I'm happy to try a new genre!
Thank you

I quite like medical and action books


would definitely recommend The Hunger Games and the Percy Jackson series if you haven't already read them


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Joleee
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#20
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