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Hazelly
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Report Thread starter 11 months ago
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:ciao: Hi and Welcome! :ciao:

This blog was first made as I was due major surgery to correct a tracheo-oesophageal fistula (TOF) which was diagnosed a month before the first-ever COVID-19 lockdown in the UK. The condition is rare whereby only seventeen other adults have this type of TOF worldwide :eek:. The fistula caused me to choke on food and drinks on a regular basis :no:

The plan for this blog was to just keep track of my days before surgery and hopefully get to know some new people on TSR :hi: it will also gave me something to focus on which certainly helped! BUT my goal now is to document my adventures through college, applying to university maybe, my health, and any adventures I get to do covid-safely! :ahee:

About me:

I am a year 13 student studying Health and Social Care :woo:

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I have a colostomy and this was placed in June 2019, aaaaaand I've finally dealt with it which has massively changed things with giving me more independence :tongue:

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I have currently applied for Child Nursing but I'm not 100% sure still whether this is my career route!
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Am also hoping to start swimming again as I haven't since getting a colostomy last year which I'm very excited about :elefant:


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As a de-stress activity, I love to do paint by numbers with intricate canvases :heart: Since starting this blog I'm now onto my second which is 2 elephants but stay tuned for more updates on it :ahee:

My stressful long and boring medical background :laugh:

I was born with a rare syndrome called VACTERL, it affects my spine, bowels, trachea, oesophagus, kidneys, and my bladder . I live with a colostomy which I am coming to terms with :rave: and I have undergone around twenty surgeries in the last seventeen years.

On January the 6th I had a follow-up appointment with my surgeon who repaired my TOF fistula, they have booked me in for an endoscopy and bronchoscopy +/- a dilation if they find a stricture which means apart of the oesophagus is tightened :eek3:

It's because for the last few months I've started to choke on foods and drinks as well as having food become a 'stickie' which isn't the nicest! With everything going on with COVID I think it will be quite sometime before getting an admission date but we will see! :yep:

I am also waiting to see my new neurosurgeon because my peads neurologist is thinking that I might have tethered cord which means scar tissue tethers to the spinal column and is causing me a whole host of issues such as numbness in the legs, back pain, bladder issues, and I struggle to stand for more than five-ten minutes . I'm quite worried about the results of this scan as it will define whether I need spinal surgery or not but with everything it's just a waiting game to see what happens and whenever I know anything I'll update everyone!

I hope you enjoy this blog and thank you to anyone who stays around! :woo: :wavey:
Last edited by Hazelly; 4 months ago
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DrawTheLine
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Best of luck for the surgery! Sounds pretty complicated, so I hope it goes well. Could I be added to the tag list too?
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Hazelly
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(Original post by DrawTheLine)
Best of luck for the surgery! Sounds pretty complicated, so I hope it goes well. Could I be added to the tag list too?
Thank you! I don’t know too much about the actual surgery either as the surgeon spoke to my parents when I got diagnosed as I had an general anaesthetic for an endoscopy. So I’m waiting on another phone call next week to find out keep about it :eek:

And of course, I’ll add you now
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The_Lonely_Goatherd
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Posting to subscribe. Thinking of you and here to support if/as needed

PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night
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absolutelysprout
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best of luck w the surgery:hugs: keep me tagged
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Hazelly
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(Original post by The_Lonely_Goatherd)
Posting to subscribe. Thinking of you and here to support if/as needed

PS. Giraffes are the best! I have a cuddly toy giraffe that I sleep with every night
Thank you. Aww cute, I agree! I have a bunny that I keep with me and I take to surgeries/admissions, had it since birth

(Original post by absolutelysprout)
best of luck w the surgery:hugs: keep me tagged
Thanks, will do
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FRS500
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Keep safe OP!
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Pathway
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:hugs: I hope it goes well. Stay safe please.
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username5332444
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i hope it goes well!!

i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain
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danc1456
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hope it all goes well. Nice to see that its going ahead and i bet your quite pleased about that.
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halsx11
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Hi hope the OP is successful 🙌 for now just try and relax as much as possible! I just read ur blog to me your a hero inside out! I can’t imagine how it’d feel like going through this! We’re all here for you! 🥰🥰 Hazelly
Last edited by halsx11; 11 months ago
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furryface12
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Good luck! Hope all goes well :hugs:
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Anonymous778
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Sounds interesting, good luck! Tag me for updates x
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Hazelly
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(Original post by FRS500)
Keep safe OP!
(Original post by Pathway)
:hugs: I hope it goes well. Stay safe please.
(Original post by furryface12)
Good luck! Hope all goes well :hugs:
(Original post by Anonymous778)
Sounds interesting, good luck! Tag me for updates x
Thank you for the kind messages it means a lot, I hope you're all doing okay. Anonymous778
will do
Last edited by Hazelly; 11 months ago
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Hazelly
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(Original post by halsx11)
Hi hope the OP is successful 🙌 for now just try and relax as much as possible! I just read ur blog to me your a hero inside out! I can’t imagine how it’d feel like going through this! We’re all here for you! 🥰🥰 Hazelly
That's the plan for relaxing! I'm starting out on some new Netflix programs to pass the time as it feels like each hour is dreading now. Thank you so much for reading my other blog and this message was so nice to read. Massive thank you :hugs:

(Original post by danc1456)
hope it all goes well. Nice to see that its going ahead and i bet your quite pleased about that.
Very pleased, I've been waiting so long for this surgery and my choking episodes have gotten worse, I feel like the next two weeks will feel like forever!

(Original post by certirinc)
i hope it goes well!!

i also have to go in for surgery for a congenital disorder very soon. it's one of the worst feelings in the world. i truly understand your pain
Thanks , I hope your surgery goes well. I definitely agree with you, the thought of surgery is quite scary. I'm always here if you'd like someone to chat about your upcoming surgery? PM is always open
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Chronoscope
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Good luck! :hugs: you've got this
What genre of books would you say you're interested in? (YA/fantasy/action/etc?)
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Hazelly
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(Original post by Chronoscope)
Good luck! :hugs: you've got this
What genre of books would you say you're interested in? (YA/fantasy/action/etc?)
Thank you :hugs:

I quite like medical and action books Though I'm happy to try a new genre!
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Chronoscope
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(Original post by Hazelly)
Thank you :hugs:

I quite like medical and action books Though I'm happy to try a new genre!
Ooh very nice :awesome: idk about medical books but
would definitely recommend The Hunger Games and the Percy Jackson series if you haven't already read them (Percy Jackson I would say is definitely more lighthearted compared to Hunger Games though :yep: )
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Anonymous #1
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babyshark They like to answer these questions.
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Joleee
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Hazelly can i get to know you?:muse: :king1:

that's awesome you have your surgery scheduled - i know it's going to go amazing! really want to see your paint by numbers of a giraffe, i'm so not kidding i used to love that stuff
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