Chronic Pain Society

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chelseadagg3r
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Hello! This thread is the main discussion thread for the Chronic Pain society, which you can join here

Chronic pain can be mild or excruciating, episodic or continuous, inconvenient or totally incapacitating. Some people suffer from chronic pain as a result of injury or trauma, because of a medical condition, even sometimes for a reason unknown

I've seen quite a few people around here with chronic pain, and I know it can be so isolating. I thought it would be a good idea to set up somewhere we can talk about it with people who understand from experience, and can get advice and support

About me:
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I've had milder but constant joint pain since about 5 years old, which has gotten a lot worse over the years. After a back injury that healed but never stopped hurting, I was diagnosed with fibromyalgia. The back pain is really bad and makes it difficult to walk. I've had the severe back pain for 3 years now.



You may also be interested in:

CFS/ME Society
Mental Health Support Society
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Anonymous #1
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Hi! I suffer from chronic pain which has been caused due to a chronic illness I have. Its awesome that you have a thread and society about this!
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chelseadagg3r
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(Original post by Anonymous)
Hi! I suffer from chronic pain which has been caused due to a chronic illness I have. Its awesome that you have a thread and society about this!
Hello! :wavey: Really sorry to hear that I just figured it would be cool to have a dedicated place to talk, support, and just rant if need be

Why let it tear us down when it could bring us together, you know?
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Anonymous #1
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(Original post by chelseadagg3r)
Hello! :wavey: Really sorry to hear that I just figured it would be cool to have a dedicated place to talk, support, and just rant if need be

Why let it tear us down when it could bring us together, you know?
Exactly! I second this completely. I find it difficult to talk to my friends about bc tbh the condition I have is embarassing to have imo and I feel like none of them would be able to relate when it comes to talking about the pain? Hahaha I'm guessing I'll be posting on here quite a bit
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PandaWho
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Chronic pain sufferer here :wavey:

Iv always for as long as i can remember suffered with joint pain but the drs have always put it down to something else, never looked into it. But it got worse throughout my body when i first dislocated my right shoulder back in about 2009.
Iv since been diagnosed with hypermobility syndrome but Fibromyalgia has been questioned by a nurse.
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It's****ingWOODY
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Diagnosed with Chronic Fatigue Syndrome and Fibromyalgia, so yeah :lol:
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chelseadagg3r
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(Original post by Anonymous)
Exactly! I second this completely. I find it difficult to talk to my friends about bc tbh the condition I have is embarassing to have imo and I feel like none of them would be able to relate when it comes to talking about the pain? Hahaha I'm guessing I'll be posting on here quite a bit
Yeah, I get what you mean. Especially if you look mostly well, it's like people can't put it together that you're in so much pain. In that case, a very warm welcome :five:

(Original post by PandaWho)
Chronic pain sufferer here :wavey:

Iv always for as long as i can remember suffered with joint pain but the drs have always put it down to something else, never looked into it. But it got worse throughout my body when i first dislocated my right shoulder back in about 2009.
Iv since been diagnosed with hypermobility syndrome but Fibromyalgia has been questioned by a nurse.
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Hypermobile here too! I mess with my fingers when I'm stressed and completely freaked out my CPN because my fingers bend so far the wrong way :laugh: Welcome, welcome!
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chelseadagg3r
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(Original post by WoodyMKC)
Diagnosed with Chronic Fatigue Syndrome and Fibromyalgia, so yeah :lol:
Snap! I remember you're very into fitness, right?
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Anonymous #1
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(Original post by chelseadagg3r)
Yeah, I get what you mean. Especially if you look mostly well, it's like people can't put it together that you're in so much pain. In that case, a very warm welcome :five:
OMFG THIS!!! Some don't believe me when I say I'm in hospital or something bc they say :dolphin::dolphin::dolphin::dolphin: like 'oh but you looked fine yesterday'. Urrrggggggghhhhhh that reallllllyyyyy pisses me off!!!!!!!!!

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fml you have no idea how happy I am rn that I was able to let that out


tysm for the warm welcome!!!
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chelseadagg3r
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(Original post by Anonymous)
OMFG THIS!!! Some don't believe me when I say I'm in hospital or something bc they say :dolphin::dolphin::dolphin::dolphin: like 'oh but you looked fine yesterday'. Urrrggggggghhhhhh that reallllllyyyyy pisses me off!!!!!!!!!

Spoiler:
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fml you have no idea how happy I am rn that I was able to let that out


tysm for the warm welcome!!!
Yes! I get the same. Even had hospital staff say I look fine therefore must be before. My GP can tell after knowing me so long after though, because little things change like they way I talk and stuff

That's what this place is for
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PandaWho
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(Original post by chelseadagg3r)
Yeah, I get what you mean. Especially if you look mostly well, it's like people can't put it together that you're in so much pain. In that case, a very warm welcome :five:



Hypermobile here too! I mess with my fingers when I'm stressed and completely freaked out my CPN because my fingers bend so far the wrong way :laugh: Welcome, welcome!
Yeah i always freak averyone out with my super bendy joints.
My party trick used to be that i could lay one my stomach and bend my legs over so my feet could touch the floor next to my med while my thighs were still touching the floor!

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Anonymous #2
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Daily migraines, joint pain, muscle pain, fatigue, IBS

Although, the migraines are by far the most debilitating

Probably all linked aswell

Mentioning it to friends is a no-go, ' you look fine, its just a headache, we all get aches and pains, im tired too.'
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chelseadagg3r
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(Original post by PandaWho)
Yeah i always freak averyone out with my super bendy joints.
My party trick used to be that i could lay one my stomach and bend my legs over so my feet could touch the floor next to my med while my thighs were still touching the floor!

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Nice! I used to be awesome at ballet because my hips turn out so far, and my feet are so incredibly bendy :laugh:
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It's****ingWOODY
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(Original post by chelseadagg3r)
Snap! I remember you're very into fitness, right?
Well, I'm into lifting rather than general fitness but yeah I'd love to be able to do endurance-based fitnessy stuff as well but my body just doesn't tolerate it.
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chelseadagg3r
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(Original post by Anonymous)
Daily migraines, joint pain, muscle pain, fatigue, IBS

Although, the migraines are by far the most debilitating

Probably all linked aswell

Mentioning it to friends is a no-go, ' you look fine, its just a headache, we all get aches and pains, im tired too.'
Yeah, I hate it when people completely minimise what you're feeling. A migraine for example could be absolute agony, like you might feel like you're dying, and there will always be someone who lightheartedly goes 'yeah I have a bit of a headache too'
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chelseadagg3r
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(Original post by WoodyMKC)
Well, I'm into lifting rather than general fitness but yeah I'd love to be able to do endurance-based fitnessy stuff as well but my body just doesn't tolerate it.
That's really interesting. I used to be really really active, but I haven't been in years because I haven't found anything I can do without worsening everything. I might give weights a try at some point! Your results are really great though, very admirable
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Anonymous #1
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(Original post by Anonymous)
Daily migraines, joint pain, muscle pain, fatigue, IBS

Although, the migraines are by far the most debilitating

Probably all linked aswell

Mentioning it to friends is a no-go, ' you look fine, its just a headache, we all get aches and pains, im tired too.'
Sorry to hear about the IBS, I have something similar Someone even had the audacity to tell me 'its a phase' lol like :dolphin::dolphin::dolphin::dolphin: off!! :lol:
(Original post by chelseadagg3r)
Yes! I get the same. Even had hospital staff say I look fine therefore must be before. My GP can tell after knowing me so long after though, because little things change like they way I talk and stuff

That's what this place is for
My GP was the one that delayed my visit to the hospital (the last time i went to the gp for anything was before diagnosis over two years ago lol). Tbh I really do despise my GP bc she delayed things to a point where it took almost half a year until I was finally admitted into hospital and by that point things got really bad. Honestly am so lucky that I'm not as bad than I was back then I hated myself then. Do you also have problems with self confidence bc I have that a lot - at times I hate looking at myself in the mirror
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chelseadagg3r
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(Original post by Anonymous)
Sorry to hear about the IBS, I have something similar Someone even had the audacity to tell me 'its a phase' lol like :dolphin::dolphin::dolphin::dolphin: off!! :lol:


My GP was the one that delayed my visit to the hospital (the last time i went to the gp for anything was before diagnosis over two years ago lol). Tbh I really do despise my GP bc she delayed things to a point where it took almost half a year until I was finally admitted into hospital and by that point things got really bad. Honestly am so lucky that I'm not as bad than I was back then I hated myself then. Do you also have problems with self confidence bc I have that a lot - at times I hate looking at myself in the mirror
Thankfully my GP is great, I've just had problems with specialists and stuff. I do, yeah. I have mental health problems which they think might be related, and others from trauma, but I do have problems with self confidence and self esteem. It used to be a lot worse, but antidepressants helped. It's still a problem, but I found just talking to other people who understand what it's like to be chronically ill helps because so many feel the same
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Anonymous #1
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(Original post by chelseadagg3r)
Thankfully my GP is great, I've just had problems with specialists and stuff. I do, yeah. I have mental health problems which they think might be related, and others from trauma, but I do have problems with self confidence and self esteem. It used to be a lot worse, but antidepressants helped. It's still a problem, but I found just talking to other people who understand what it's like to be chronically ill helps because so many feel the same
Ahh sorry to hear about the MH problems My MH issues arised after and just before I was diagnosed with my illness bc before, I would always feel that no one was trying to know what was going on, and after I kept thinking why this was all happening to me ygm? Yh I found that talking to people also helps - my best friend has depression but she doesn't take anti depressants, so we just talk everyday and try our hardest to make sure we're never upset or sad and always try to lift each others spirits whenever we may be. We can't relate in terms of the pain but we can relate in terms of our thoughts and what we may be thinking about.
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furryface12
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:woo: good thread! CFS and possibly fibromyalgia here, among other things. It's most of the time not my main symptom but definitely one of the worst when it is bad! Definitely feeling the useless GP pain too :rolleyes:
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